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Elizabeth McGuire
Public Health Analyst
HRTW Project Officer
Division of Children with Special Health Care Needs
Integrated Services Branch
Maternal and Child Health Bureau
Health Resources and Services Administration
Rockville, MD
301-443-9290
emcguire@hrsa.gov
Elizabeth McGuire is a public health analyst for the US Department of
Health and Human Services, Health Resources and Services Administration,
Maternal and Child Health Bureau, Division of Services for Children with
Special Health Needs, Integrated Services Branch. Mrs. McGuire is
responsible for the Division's focus on youth with special health care
needs making the transition to adult services and employment. Mrs. McGuire directs and serves as the Project Officer for the Healthy & Ready to Work initiative. She served as a public health and nutrition Peace Corps volunteer in Suriname, South America as well as Project Officer for the Title V Block Grant. Mrs. McGuire has special interests in prevention of congenital anomalies, as well as child development.
Toni Wall, MPA
PI, Healthy & Ready to Work National Resource Center
Director, Children with Special Health Needs
Division of Family Health, Maine Department of Health & Human Services,
Augusta, ME
207-287-5350
toni.g.wall@maine.gov -or- toniwall@hrtw.org
Expertise: Title V CSHCN policies and programming, transition, and, youth advisory councils.
Toni Wall is the Maine Title V CSHCN Director and Director of HRSA/MCHB’s Healthy & Ready to Work National Resource Center. She has extensive experience serving as Project Director on state and federally-funded initiatives including the Maine Adolescent Transition Partnership and Maine Works for Youth! (Maine’s MCHB-funded HRTW Phase I and Phase II initiatives), statewide Traumatic Brain Injury projects, and the recently-funded MCHB Integrated Services Grant. She supports Maine Family Voices, the Rural Medical Home Improvement Project, and the Family to Family Support Network. She serves on a number of state and federal interdepartmental committees and boards and is the AMCHP representative to the National Initiative on Physical Fitness for Children and Youth with Disabilities. Under Ms. Wall’s leadership, Maine is credited with being the first state in the nation to have a Title V Youth Advisory Council as well as to have a youth with disabilities participate as a reviewer for the MCHB Block Grant. She holds a BA in Environmental Science/Biology and a Masters in Public Administration.
Patti Hackett, MEd
Co-Director
Healthy & Ready to Work National Resource Center
Maine Support Network, telework office: Bangor, Maine
P 207-992-8254
pattihackett@hrtw.org
www.hrtw.org
Expertise: Federal policy, self-determination, health/wellness, inclusive practices in the classroom and workplace, and thinking out of the box.
Patti Hackett serves as the Co-Director and Project Lead of the MCHB funded Healthy & Ready to Work National Resource Center at Maine Support Network.
For the over a decade she has been active on the national level promoting inclusive employment opportunities for youth who have a disability or chronic illness. Patti is widely recognized as one of the most visionary, respected, and productive leaders in our Nation’s ongoing efforts to provide and promote family-centered care and self-determination for children and youth with special health care needs. Effective “behind the scenes”, she has gained the trust and respect of many staff from numerous federal and state agencies through her commitment to “customer-service” and her content expertise in child health policy.
In her current position she provides technical assistance to Maternal and Child Health Bureau (MCHB), their funded Projects, American Academy of Pediatrics, state Title V Programs and family and youth leadership organizations. Patti brings an over 30 year commitment to inclusive education, leadership in implementing legislative initiatives and innovative problem solving.
A former teacher in Orlando, FL and Cincinnati, OH, she initiated inclusion and assistive technology classes for elementary and middle school students. She credits her adult son, Glen Gallivan who was technology dependent with providing her with insight and creative vision. Patti earned her MEd in Special Education from Xavier University, Cincinnati, OH and her BS in elementary education from Worcester State College, Worcester, MA.
“Healthy & Ready to Work”, by the way, is a phrase that she coined.
Debbie Gilmer, MEd
Co-Director
Healthy & Ready to Work National Resource Center
Maine Support Network, telework office: Orono, Maine
P 207-866-4007
C 207-852-0992
debbiegilmer@hrtw.org -or- gilmer@maine.edu
Expertise: Interagency partnerships, youth involvement in policy and programming, and inclusive education.
Deborah Gilmer, MEd. serves as Associate Director of the Maine Support Network, Assistant Director of the Western Maine Partnership at the University of Maine at Farmington and Director of the Center for Self Determination, Health & Policy. She is the Project Co-Director for the HRTW National Resource Center and the Interagency Partnership Lead. She is also Co-Director of Integrated Community Services for Children and Youth with Special Health Care Needs in Maine, Maine’s Integrated Services grant.
Ms. Gilmer has been engaged in policy development and systems change in Maine for more than twenty years working in partnership with state and community agencies, providers, families and youth, was Project Director or Project Co-Director of Maine’s HRTW Needs Assessment and Phase I and Phase II initiatives, Director of Maine’s Champions for Progress State Incentive project on medical home and co-team leader for Maine’s Medical Home Learning Collaborative initiative. She is co-directing the Maine State GEAR UP program supporting economically disadvantaged youth and their families to aspire to post secondary education for the Maine Department of Education. She served on the Governor’s Task Force on Mental Retardation, the Integrating Adult Services Sub-Committee of the Governor’s Unification Council in 2003 and Integrating Services Work Group of the Commissioner’s Implementation Advisory Committee in 2004 addressing the merger of the two state agencies into the DHHS. She is a member of the Society for Adolescent Medicine (SAM) and is widely recognized for her commitment to family and youth-centered services as well as translating policy to practice in the community as demonstrated by her recent nomination for a Robert Wood Johnson Community Health Leadership Award.
She was a high school special education teacher, regional transition coordinator and has directed a wide variety of state and federally-funded initiatives in the areas of health care, school reform, student centered planning, employment and transition.
Richard (Rich) C. Antonelli, MD, FAAP, MS
Medical Home & Transition Medical Advisor
Director, Dept of General Pediatrics
Chief, Division of Primary Care
Director, Department of General Pediatrics
Connecticut Children's Medical Center
Co-Head, Academic Division of General Pediatrics
University of Connecticut School of Medicine
282 Washington Street, Hartford, CT 06106
phone 860-545-9333
rantonelli@ccmckids.org -or- richantonelli@hrtw.org
Expertise: Medical Home, Care Coordination, and partnering with families.
Rich serves as Medical Home and Transition Medical Advisor. As a member of the Project Advisory Committee of the National Center of Medical Home Initiatives at the American Academy of Pediatrics, he serves as a liaison to the National Center of Medical Home Initiatives at the AAP, strengthening a linkage with the AAFP, and collaborating with Bright Futures. He is Chief, Division of Primary Care and Director, Department of General Pediatrics at the Connecticut Children's Medical Center and Co-Head, Academic Division of General Pediatrics at the University of Connecticut School of Medicine.
Rich is recognized as a leader in the medical home initiative, he has presented nationally for many years on Medical Home systems development, family-professional partnership, outcomes of care coordination, and continuous quality improvement. He recently served on the faculty of the NICHQ medical home learning collaboratives and is a member of the MCHB National Expert Work Group on Transitions.
Mallory Cyr, BFA
Youth Coordinator
Healthy & Ready to Work National Resource Center
Integrated Services
Maine Support Network
(207) 576-1980
mallorycyr@hrtw.org
Mallory Cyr serves as the Youth Coordinator for the HRSA/MCHB funded projects coordinated at the Maine Support Network: the Healthy & Ready to Work National Resource Center and the NFI Integrative Services grant for Maine. She teleworks from her home in Sabattus, Maine.
In this capacity she assists in the development of materials for youth and young adults with special health care needs, provides technical assistance to State Title V CSHN Programs in support creating and strengthening state Youth Advisory Councils, identifies strategies to increase youth involvement at the policy level and on the individual level, and develop a national network of youth leaders who have expertise in health care policy and practices.
Mallory was part of the key staff that created the first State Title V CSHCN Program’s Youth Advisory Council in the country; YEA ME (young educators and advocators of Maine). She served as the Chair on this YAC for 8 years and currently now oversees the regional coordinators for the Youth and Family Advisory Committees.
Her advocacy and public awareness activities began when she was a sophomore in high school and continued throughout her college years. She has assisted in the planning of many events on transition for youth with medical challenges, and has spoken at national conferences for medical professionals.
A recent graduate from the University of Maine at Farmington with a degree in Creative Writing (2007), she is working on her autobiography discussing the challenges (and successes) of living and thriving with with a rare digestive disorder and growth impairment. In addition to her awareness activities, Mallory has a love for the theatre and has performed in several theatrical fundraisers for Paul Newman’s Hole in the Wall Gang Camp, including two star studded performances at Lincoln Center.
Kathy Blomquist, RN, MSN, MPH, FNP-C, PhD
HRTW Consultant,
Kentucky Commission for CSHCN
Lexington, KY 40504
P 859-252-3170 x 242
kathyblomquist@hrtw.org
Expertise: Care Coordination, state Title V CSHCN Programs, evaluation design and a love for data.
Kathy Blomquist has a background in public health nursing in Ohio, school nursing in Texas, and teaching nursing in Illinois and Kentucky. She participated in several research and evaluation projects at the University of Kentucky. She joined MCHB-funded activities in 1994 as the federally-funded CHOICES Co-coordinator when the project was expanding public-private collaborations across the country. She continued in this position with the CHOICES Transition Project during Healthy and Ready to Work, Phase I.
Located in the Lexington office of the Kentucky Commission for Children with Special Health Care Needs, Kathy was the Grant Manager for the HRTW KY TEACH project from 1999 to 2001 and then became a consultant to the project with a focus on evaluation. Dr. Blomquist is committed to using her expertise to assist the HRTW grantees and state Title V programs in collecting and using data to improve systems and outcomes and evaluate the overall impact of the HRTW Center on youth transition outcomes. She will oversee areas and provide technical assistance on: Care coordination, Title V CSHCN program, public/private partnerships, professional development, and evaluation. She is married to a motorcycling economist and is the mother of two transitioned sons.
Liz DePoy, PhD
HRTW Project Evaluator
University of Maine, Orono
Liz serves as evaluator for the project. She is a nationally and internationally recognized scholar in research and evaluation methods and has collaborated in developing, implementing and evaluating HRTW initiatives. She brings significant methodological and substantive experience to the project.
Liz is Coordinator and Professor of Interdisciplinary Disability Education at the Center for Community Inclusion and Disability Studies. She is nationally and internationally recognized scholar in research and evaluation methods and in substantive theory development focusing on disability as diversity. She received a Fulbright Scholarship in 2003, and the Allan Meyers Award from the Disability Forum of the American Public Health Association in 2005 for her collaborative, participatory action scholarship, theory development and researtch application to advancing equality of opportunity for citizens including those with disabilities and special health care needs. She has authored and/or co-authored seven books, has contributed chapters to numerous edited collections, and has published over 50 peer-reviewed articles, many of which address issues relevant to children and youth with special health care needs. Her recent publications include co-authored books on evaluation, disability, and most recently the third edition of her book, Introduction to Research.
Theresa Glore, MS
HRTW Consultant - Title V
HRTW National Resource Center
1310 Eastern Pkwy.
Louisville, KY 40204
P 502-454-5992 C 502-593-2512
theresaglore@hrtw.org
Theresa Glore joined the HRTW National Resource Center in June 2007. She serves as a liaison for the project to State Title V CYSHCN programs, assists in the development of tools and materials for Title V and provides support for HRTW topical calls and Title V peer support technical assistance. She formerly served as a deputy with the Kentucky Commission for Children with Special Health Care Needs responsible for the Title V Block Grant, community partnerships, and other grants and program development and was a team member of the Kentucky HRTW Phase II project. Prior to the Commission, she worked in various capacities in the Kentucky Department for Public Health, directing health education and community health status assessment, HIV prevention and services, the Preventive Health and Health Services Block Grant, and the Behavioral Risk Factor Surveillance System; served as chief procurement/contracts officer for the department; and, acted as a liaison to the state’s federally funded primary care centers.
Betty Presler, ARNP, PhD
Transition Task Force - Shriners Hospitals for Children
Cerebral Palsy Coordinator -Lexington Unit, SHC
Lexington KY 40502
P 859-266-2101
bpresler@shrinenet.org
Expertise: Care coordination, strengthening self help/care skills, transition of medical home from pediatric to adult healthcare.
Betty Presler is never bored. As the CP Coordinator at Shriners Hospital in Lexington, KY and as the Co-Director of the HRTW National Center, she truly believes that youth and their families will make better decisions if given enough information that is timely and accurate. A champion of self-determination and public/private partnerships, it was her vision that lead to an innovative project known as CHOICES, a collaborative between Shriners and state Title V CSHSN Programs. Later that project grew to become facilitate transition models in 25 states. When she does choose to relax, she and her husband on weekends can be found on their gorgeous mountain cabin in the beautiful Allegheny Mountains of NC. She is a mother of many and a proud grandma of even more. She is widely respected networker and promoter of care coordination.
Ceci Shapland RN, MSN
HRTW Consultant -
Vadnais Heights, MN 55127
P 651-482-1811
cecishapland@hrtw.org
Expertise: Youth Involvement in their care and influencing policy, family centered care practices, working smarter with existing resources to maximize results, and liaison to family and youth leadership organizations.
Ceci Shapland has a long history working with PACER (the national center for Parent Training and Information centers) on MCHB-funded projects related to transition. An early advocate for youth, she promoted youth-directed services and developed policy and materials aimed at YSHCN having a voice in their own care plan. Between 1990 and 1993, she assisted PACER in developing and implementing an innovative project to prepare youth and their parents for the transition from pediatric to adult health care. This project, Speak Up for Health, focused on addressing youth and family needs related to communicating with health providers, developing self-advocacy, and promoting independence in health care. Between 1993 and 1997, while at PACER, she directed a major survey of youth with disabilities on their perceived needs in transition (1100 YSHCN ages 14 -25). Information from this survey, published in a national report, Teens Speak Out (1997), has been used throughout the nation to develop appropriate transition services and inform policymakers.
Participating in the first wave of MCHB-funded projects to address transition and as a parent of an adult with special health care needs (SHCN), this nationally recognized consultant will bring vast experience in the field of transition to the Center. As the liaison among key emerging youth leadership organizations (HRTW, National Youth Leadership Network - NYLN, Kids as Self-Advocates, (KASA) and established national leadership groups for families (PACER, The ALLIANCE, Family Voices) she works in collaboration with compensated youth leaders through subcontracts with the National Youth Leadership Network and Kids As Self Advocates.
Patricia (Trish) Thomas
HRTW Consultant
Partnership Coordinator
Family Voices National Center for Family Professional Partnerships
Albuquerque, NM
Phone: 505-872-4774
tthomas@familyvoices.org
www.familyvoices.org
Expertise: Cultural Competence, Tribal policy, early intervention, screening, genetics, hearing impairments, and family partnerships.
Trish serves as Consultant and Cultural Competence and Liaison Advisor to Family Voices (FV) network and the Tribal Roundtable for Young Adults with Disabilities Summit of the Department of Health and Human Services' Young Adult Program, of the National Indian Health Board (NIHB) in coordination with the Indian Health Service (IHS) and the Tribal Roundtable Advisory Group. In addition she is also Consultant on Cultural Competence & Liaison Advisor for the Healthy & Ready to Work National Resource Center.
In this capacity she provides technical assistance in review and development of project materials and nationwide dissemination among the FV network. She has held several positions with in the Family Voices National office she currently hold the position of Partnership Coordinator for the National Center on Family/Professional Partnerships for CYSHCN coordinating the network and partnering of various local, regional, and national groups with the Family Voices Network and the Family to Family Health Information Centers. She also mentors family leaders who come from the various ethnic and racial backgrounds along with training of health care professionals. She is also part of a faculty training team for the Georgetown's University National Center on Cultural Competence CSHCN program. Trish sits on many boards, task forces and committees at the local, state, regional and national level, which include but are not limited to NM long term care advisory board, Georgetown University National Center for Cultural Competency CSHCN Program advisory board, AMCHP Conference Planning Committee, Mountain State Regional Genetics Network newborn/education/consumer advisory boards, National Indian Health Board Tribal Youth Summit Advisory Committee, and the National Center for Hearing Assessment and Management (NCHAM) advisory board. Trish has also reviewed grants for the Federal government, state programs and Regional programs over the past 16 years.
Trish is a member of the Laguna Tribe in New Mexico and resides on the Pueblo of Laguna Indian Reservation. She is the mother of two children, a daughter Kori, who manages allergies and asthma, and a son Travis, who was born with severe to profound bilateral hearing loss, a vision impairment and a few other undiagnosed conditions. Trish Thomas has had to overcome cultural barriers in order to speak out for her son's rights. She has worked in the area of deaf and hard-of-hearing children with special healthcare needs for over 20 years. And she is a proud grandmother to Leolla and Maxamillion.
Patience (Pacey) H. White, MD, FAAP, MA
Medical Home & Transition Medical Advisor
Washington, DC
pwhite@arthritis.org
Expertise: Transition to adulthood, medical home, care coordination, training for physicians, and evaluation.
Pacey serves as Medical Home and Transition Medical Advisor. She is both a pediatrician and internist with a specialty in rheumatology. Pacey will serve as consultant by providing technical assistance to medical home projects on transition planning, tools, implementation strategies, develop collaborations with adult-focused medicine, facilitate interactions between internal medicine and pediatricians and organizations.
As a member of the AAP’s Division on Coding and Reimbursement she will provide expertise on developing innovative coding guides for transition services. Pacey is professor of medicine and pediatrics at George Washington School of Medicine and Health Sciences and Chief Public Health Officer at the National Arthritis Foundation.
For the past 23 years she has been active in clinical medicine, research, education and academic administration. She is a leader in the field of assisting youth with chronic illnesses and disabilities in their transition to employment, independence, post secondary education and adult health care. She has been a consultant to the youth subcommittee of the President's Task Force for Employment of Adults with Disabilities and continues to play a key role in developing cross-system collaboration around the issue of transition at the national level. She created and served as the executive director of the Adolescent Employment Readiness Center at Children’s National Medical Center in Washington DC for 15 years.
She received a Robert Wood Johnson Health Policy Fellowship (2000-2001) and worked on the Senate Finance Committee on the issues of prescription drugs, Medicaid and the uninsured. Currently she is the Chief Public Health Officer to the Arthritis Foundation.
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