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• Government & National
Sources
ANNIE CASEY
Kids Cout
www.aecf.org/kidscount/
KIDS COUNT has compiled indicators of child well-being from
the 2000 U.S. Census and created an interactive online database.
The site consists of data from the Census Short Form and
is being updated weekly as the Census Bureau releases new
data from the Long Form. Rankings on socioeconomic indicators
will be available after all 50 states have been released.
CENSUS - Current Population Survey (CPS)
www.bls.census.gov/cps
The Current Population Survey (CPS) is a monthly survey of
about 50,000 households conducted by the Bureau of the Census
for the Bureau of Labor Statistics. The survey has been conducted
for more than 50 years. The CPS is the primary source of
information on the labor force characteristics of the U.S.
population. The sample is scientifically selected to represent
the civilian non-institutional population. Respondents are
interviewed to obtain information about the employment status
of each member of the household 15 years of age and older.
The sample provides estimates for the nation as a whole and
serves as part of model-based estimates for individual states
and other geographic areas. Estimates obtained from the CPS
include employment, unemployment, earnings, hours of work,
and other indicators. They are available by a variety of
demographic characteristics including age, sex, race, marital
status, and educational attainment. They are also available
by occupation, industry, and class of worker. Supplemental
questions to produce estimates on a variety of topics including
school enrollment, income, previous work experience, health,
employee benefits, and work schedules are also often added
to the regular CPS questionnaire. Website is gateway to other
related surveys.
CDC - CENTERS FOR DISEASE CONTROL AND PREVENTION
www.cdc.gov
The Centers for Disease Control and Prevention (CDC) is recognized
as the lead federal agency for protecting the health and
safety of people - at home and abroad, providing credible
information to enhance health decisions, and promoting health
through strong partnerships. CDC serves as the national focus
for developing and applying disease prevention and control,
environmental health, and health promotion and education
activities designed to improve the health of the people of
the United States.
CDC - Behavioral Risk Factor Surveillance System (BRFSS)
www.cdc.gov/brfss/
This survey, conducted through the Centers for Disease Control,
provides annual state-level data based on a randomized sample
of the general adult population. Information is gathered
regarding usual source of health care, insurance coverage,
and employment status broken down in age categories including
ages 18-24 so is particularly useful in measuring indicators
related to successful transition to adult health care. Some
states have added questions to this survey to obtain data
on particular health conditions (such as asthma, diabetes,
and depression) and more information on health care costs
and barriers. Potentially states could use this survey to
identify a broader population of adults with special health
care needs and add questions regarding the Healthy People
2010 outcomes.
CDC- Morbity & Mortality Weekly Reports (MMWR)
www.cdc.gov/mmwr
The MMWR weekly contains data on specific diseases as reported
by state and territorial health departments and reports on
infectious and chronic diseases, environmental hazards, natural
or human-generated disasters, occupational diseases and injuries,
and intentional and unintentional injuries. Also included
are reports on topics of international interest and notices
of events of interest to the public health community.
CDC - NATIONAL CENTER FOR CHRONIC DISEASE PREVENTION AND
HEALTH PROMOTION
www.cdc.gov/nccdphp/index.htm
Chronic diseases—such as heart disease, cancer, and
diabetes—are the leading causes of death and disability
in the United States. These diseases account for 7 of every
10 deaths and affect the quality of life of 90 million Americans.
Although chronic diseases are among the most common and costly
health problems, they are also among the most preventable.
Adopting healthy behaviors such as eating nutritious foods,
being physically active, and avoiding tobacco use can prevent
or control the devastating effects of these diseases.
CDC -Centers for Disease Control and Prevention
www.cdc.gov
CDC- Morbity & Mortality Weekly Reports (MMWR)
www.cdc.gov/mmwr
CDC - NATIONAL CENTER FOR HEALTH STATISTICS
Health, United States, 2002 with Chartbook on Trends in the
Health of Americans
www.cdc.gov/nchs/hus.htm
Complimentary copies of the printed report are available
through the web site while supplies last. Health, United
States, 2002 is the 26th annual report on the health status
of the Nation. This year's report includes 147 trend tables
organized around four broad subject areas: health status
and determinants, health care use, health care resources,
and health care expenditures. Disparities in health statistics
by race, ethnicity and socioeconomic status are presented
in many tables. Note that Chartbook for 2000 has Trends in
Adolescent Health
CDC - National Health Interview Survey (NHIS) conducted
yearly
National Health Interview Survey-Disabilities (NHIS-D) last conducted
in 1997
www.cdc.gov/nchs/nhis.htm
Some National Center Health Statistics data systems and surveys
are ongoing annual systems while others are conducted periodically.
NCHS has two major types of data systems: systems based on populations,
containing data collected through personal interviews or examinations;
and systems based on records, containing data collected from vital
and medical records. The website describes the surveys and results
and access to Health US, 2001, which summarizes health surveys.
The NHIS-D is a telephone survey of a randomized sample of children
and adults with developmental disabilities, specific health conditions,
behavior problems, sensory loss, or physical disabilities. The survey
contains questions related to medical home, transition, screening,
and access to community-based services. Although data are provided
at a regional level, some states have ‘purchased’ additional
data collection to acquire state-level data. Questions from these
surveys can also be used by states as a model in the development
of their own surveys.
DATA RESOURCE CENTER FOR CHILD AND ADOLESCENT HEALTH
From Information to Action: Home page for Children and Youth with
Special Health Care
Needs (CYSHCN)
www.cshcndata.org
This site provides tips and tools for using data to help guide improvements
in community-based systems of care for CYSHCN - including an easy
to use, interactive data query feature that allows users to view
and compare state, regional and nationwide findings from the National
Survey of Children with Special Health Care Needs. Educational materials
about the survey as well as state profiles on key performance indicators
for CYSHCN from the National Survey of Children with Special Health
Care Needs are also available.
FACCT - FOUNDATION FOR ACCOUNTABILITY
www.facct.org
FACCT - Foundation for Accountability is a national organization
working to improve health care for Americans by advocating
for an accountable and accessible system where consumers
are partners in their care and help shape the delivery of
care. FACCT believes that America's ability to create a more
responsive health care system depends on informed, motivated
consumers who help shape the system and hold it accountable
for quality.
KAISER FAMILY FOUNDATION
State Health Facts
www.statehealthfacts.kff.org/cgi-bin/healthfacts.cgi?
This new resource contains the latest state-level data on
demographics, health, and health policy, including health
coverage, access, financing, and state legislation.
NAHIC - NATIONAL ADOLESCENT HEALTH INFORMATION CENTER
Policy Center Website / YouthLinks
youth.ucsf.edu/policycenter/projects.html
The Policy Center Website established an online data tool
for researchers and health-care professionals with descriptions
of and access to many middle childhood- and adolescent-health
related datasets and other related informational sources.
The new data tool, Youthlinks, will provide users with an
online database of pre-reviewed resources, searchable by
a variety of fields.
- Adolescent Health Report Card
Establish a comprehensive portrait of adolescent health status
based on a wide range of health, mental health, education,
juvenile justice, economic/employment, and public policy
data. Sponsored by the William T. Grant Foundation, this
project is placing adolescent health within a developmental,
lifespan framework that links adolescent health with that
of adults, and attempts to emphasize positive health behaviors
and outcomes. It is documenting the limitations of existing
data sources and making recommendations for improving data
collection and reporting systems. Finally, it is helping
communities, counties and states to translate national
level data and to establish an agenda for adolescent health
at the local level.
SAMHSA – SUBSTANCE ABUSE AND MENTAL HEALTH
SERVICES ADMINISTRATION
National Household Survey
www.samhsa.gov
Summary of Findings from the 1999 National Household Survey
on Drug Abuse. Author: Substance Abuse and Mental Health
Services Administration. 2000.
SOCIOMETRICS CORPORATION - Data Archives
www.socio.com/data.htm
Sociometrics Corporation is a for-profit research and development
firm specializing in social science research applications.
Established in 1983 as a corporation in the State of California.
The Founder and President of Sociometrics is Josefina J.
Card, Ph.D. Sociometrics' mission is to produce research-based
products and services for a variety of target audiences.
Sociometrics' data archives currently house exemplary data
and documentation from over 200 leading studies--selected
by expert advisory panels--in seven topically-focused areas:
teen sexuality and pregnancy, the American family, social
gerontology, disability, maternal drug abuse, HIV/AIDS, and
contextual influences on behavior.
• CYSHCN
CDC – NATIONAL CENTER FOR HEALTH STATISTICS
(NCHS)
National Survey of Children with Special Health Care Needs
Survey
www.cdc.gov/nchs/about/major/slaits/cshcn.htm
National Center for Health Statistics - The primary goal
of this module is to assess the prevalence and impact of
special health care needs among children in all 50 States
and the District of Columbia. This survey explores the extent
to which children with special health care needs (CSHCN)
have medical homes, adequate health insurance, and access
to needed services. Other topics include care coordination
and satisfaction with care.
More than 3,000 households with children were screened in
order to identify 750 children with special needs in each
State. Interviews were conducted with their parents. Also,
brief health insurance interviews were conducted for children
without special needs to estimate State-level health care
coverage using equivalent-sized samples in each State. Finally,
for uninsured children from low-income households, questions
about parents' awareness of and experience with Medicaid
and the State Children's Health Insurance Program were asked
CDC – NATIONAL CENTER FOR HEALTH STATISTICS
(NCHS)
SLAITS, State and Local Area Integrated Telephone Survey
www.cdc.gov/nchs/slaits.htm
The Maternal and Child Health Bureau (MCHB) in collaboration
with the National Center for Health statistics at the Centers
for Disease Control and Prevention (CDC) sponsored this survey
through the State and Local Area Integrated Telephone Survey
(SLAITS)/ Data provides states with a prevalence rate for
the broadly defined population of children with special health
care needs health care data at State and local levels. Website
includes the questionnaire for the MCHB National Survey on
Children with Special Health Care Needs. Other resources
include data, surveys, initiatives, and research programs.
MCHB plans to repeat this survey every four years.
FAMILY VOICES
CSHCN by State
www.familyvoices.org/Information/research.htm
Information on the number of children with special health
care needs by state, the number of children with special
health care needs per household by state, and other resources
and information on the National Survey of CSHCN.
HRSA/ MCHB
Title V Systems Information Data
performance.hrsa.gov/mchb/mchreports
Data from 59 U.S. States, Territories, and Jurisdictions
are from the States' annual Block Grant applications and
reports. Data on number of children and youth with special
health care needs served by State Title V Programs. Block
Grant report and status on progress to meet performance measures.
• Insurance
Coverage
CENSUS - Health Insurance Statistics
www.census.gov/hhes/www/hlthins.html
AGENCY FOR HEALTH CARE RESEARCH AND QUALITY (AHRQ)
MEPS Data On The Uninsured Released (1999)
www.meps.ahrq.gov
Preliminary findings from the 1999 Medical Expenditure Panel
Survey (MEPS) show that 84.2% of all Americans were covered
by private or public health insurance in the first half of
1999. MEPS data indicate that in general, children are more
likely than non-elderly adults to have health insurance coverage.
Specifically, the data show that a substantial proportion
of children in the first half of 1999 were covered by public
health insurance: 28.1% of children under age 4; one in four
(25%) children age 4-6; and 1 in 5 (20%) children ages 7-12.
However, nearly 10 million children under age 18 (13.6%)
were uninsured during the first half of 1999. Young adults
ages 19-24 were the most likely not to have health insurance
coverage. MEPS is co-sponsored by the Agency for Health Care
Research and Quality (AHRQ) and the National Center for Health
Statistics.
AGENCY FOR HEALTH CARE RESEARCH AND QUALITY (AHRQ)
Medical Expenditure Panel Survey (MEPS)
www.meps.ahrq.gov
This survey uses a nationally-representative sub-sample drawn
from households that participated in the prior year’s
National Health Interview Survey. The objective is to produce
annual estimates for a variety of measures of health status,
health insurance coverage, health care use and expenditures,
and sources of payment for health services. These data are
particularly important because statisticians and researchers
use them to generalize to people in the civilian non-institutionalized
population of the United States, as well as to conduct research
in which the family is the unit of analysis. The panel design
of the survey, which features several rounds of interviewing
covering 2 full calendar years, makes it possible to determine
how changes in respondents' health status, income, employment,
eligibility for public and private insurance coverage, use
of services, and payment for care are related.
CAHMI
www.facct.org/cahmi.html
CAHMI provides leadership and resources for measuring and
communicating information about the quality of health care
for children and adolescents. Under Children with Special
Health Care Needs see the Consumer Assessment of Health Plans
(CAHPS). The Question Supplement will become part of the
Health Plan Employer Data and Information Set (HEDIS) - standardized
performance measures to compare the performance of health
plans.
• Well-being
CDC-Morbity & Mortality Weekly Reports
www.cdc.gov/mmwr
CDC - National Center for Chronic Disease Prevention and
Health Promotion
Healthy Youth: Investing in Our Nation’s Future
www.cdc.gov/nccdphp/bb_healthyyouth/index.htm
The health of young people, and the adults they will become, is critically linked
to the health-related behaviors they adopt. Certain behaviors that are often
established during youth contribute markedly to today’s major killers,
such as heart disease, cancer, and injuries. These behaviors include tobacco
use; unhealthy dietary habits; inadequate physical activity; alcohol and other
drug use; sexual behaviors that can result in HIV infection, other sexually transmitted
diseases, and unintended pregnancies; and behaviors that result in violence and
unintentional injuries (e.g., driving while intoxicated). These behaviors place
young people at increased risk for serious health problems, both now and in the
future.
HHS-U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES
Office of the Assistant Secretary for Planning and Evaluation.
Trends in the Well-Being of America’s Children & Youth,
1999.
aspe.hhs.gov/hsp/99trends/index.htm
This is the fourth edition of an annual report from the U.S.
Department of Health and Human Services (HHS) on trends in
the well-being of our nation’s children and youth.
The report presents the most recent and reliable estimates
on more than 90 indicators of well-being. It is intended
to provide the policy community, the media, and all interested
citizens with an accessible overview of data describing the
condition of children in the United States.
NATIONAL LONGITUDINAL STUDY OF ADOLESCENT HEALTH
The Untapped Power of Schools to Improve the Health of Teens
www.healthinschools.org/ejournal/2002/may02_1.htm
Summary report that was released April 2002 cites data from the
National Longitudinal Study of Adolescent Health to show that "school
connectedness"—a student’s feeling of being part
of and cared for at school—is a key to reducing teenagers’
risk for violence, substance abuse, suicide, and pregnancy. The
findings are available in two articles. "Improving the odds:
The untapped power of schools to improve the health of teens,"
by Blum, McNeely, and Rinehart, is available from the Center for
Adolescent Health at the University of Minnesota, e-mail aph@umn.edu.
"Promoting Student Connectedness to School: Evidence from the
National Longitudinal Study of Adolescent Health," by the same
authors, is published in the Journal of School Health, Vol. 72(4).
*See also Data To Know in the
Tools section.
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