What
is the physician’s role in assisting their patients transition
to
adulthood and into the adult health care system?
Some suggest this is a
team effort, the players being the physician, the family and of
course the youth with special health care needs. Busy office practices
combined with low-to-no cost reimbursement make it difficult for
many caring providers to do what they feel is necessary to facilitate
smoother and more successful health care transitions.
Some youth will elect to leave the competent, high trust
level relationship with their pediatrician for health care
that is focused on their age related and developmental needs
as a young adult. Some youth worry about their new adult
doctor knowing as much as their former physician. Will they
be listened to and recognized for their on-going expertise?
Youth who rely on a trusted other to advocate on their behalf
are concerned that the time it takes to establish this working
relationship with a new medical provider could jeopardize
their health status.
The next level of care providers and system services say
they are not prepared to “take on” managing and
paying for complex health care for these young adults. Yet,
many of them have been doing similar care for elders. Society
needs to recognize that health care needs can be managed.
Health Care Transition
can be managed and workable if:
- The transferring young adult or caregiver is versed on
their care and is an informed decision maker;
- The transferring specialist or pediatrician is available
and compensated for periodic consultations to ease the
learning curve for care; and
- If insurance plans – public or private begin to
include flexible coverage as youth merge into the workplace
doing periods of wellness and have access to affordable
coverage during non-work periods.
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