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What does HEALTH CARE mean to a young person who has special health care needs?

Many have never thought about it, because someone else usually handled these issues.

As a child, many were covered either on their parents health care insurance plans, or through public assistance programs and perhaps even a combination. Health services were often received in a pediatric office or specialist. But what happens after the child turns 18 and is now legally an adult? How and when should youth learn about these things?

These are complex issues that take time to learn. Youth must be given the opportunity to be taught skills and receive support to make the most informed decisions based on accurate and timely information. There are no quick and easy solutions.

  • ACCESS TO CARE - Will they need to change doctors once they are adults? Do they have to change doctors?

  • WELLNESS - In addition to meeting their health issues that directly relate to their special health care needs, are their other health issues being addressed? (preventive care, general check-ups or immunizations?)

  • PAYING FOR CARE - Can youth stay on their family health care plan? Should they apply for SSI/Medicaid? If they work, how does this affect health care coverage?
 

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The HRTW Center is headquartered at the Maine State Title V CSHN Program. Activities are coordinated through the Maine Support Network's Center for Self-Determination, Health and Policy. The Center is funded through a cooperative agreement (U39MC06899-01-00) from the Integrated Services Branch, Division of Services for Children with Special Health Care Needs (DSCSHN) in the Federal Maternal and Child Health Bureau (MCHB), Health Resources and Service Administration (HRSA), Department of Health and Human Services (DHHS).
Elizabeth McGuire, HRSA/MCHB Project Officer.