Desired
Outcomes:
- Health Insurance - Provide youth with special
health care needs with accessible and affordable health
insurance coverage
- Medical Home - Assure that all youth with special
health care needs have medical homes responsive to their
needs.
*Medical Home - medical
care of infants, children, and adolescents ideally
should be accessible, continuous, comprehensive, family
centered, coordinated, compassionate, and culturally
effective. It should be delivered or directed by well-trained
physicians who provide primary care and help to manage
and facilitate essentially all aspects of pediatric
care. The physician should be known to the child and
family and should be able to develop a partnership
of mutual responsibility and trust with them.
Youth with special health care needs are neither CHILDREN
nor ADULTS. Their issues and concerns are similar, but different
from both. This pivotal time called youth should be a time
in which the total environment supports the child in becoming
an adult. The support should encourage the aspirations and
expectations that lead to productive adulthood – or – if
supports are absent, it can be a time of actions that ingrain
doubt, confusion and lack of initiative.
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