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Desired Outcomes:

  • Health Insurance - Provide youth with special health care needs with accessible and affordable health insurance coverage


  • Medical Home - Assure that all youth with special health care needs have medical homes responsive to their needs.

    *Medical Home - medical care of infants, children, and adolescents ideally should be accessible, continuous, comprehensive, family centered, coordinated, compassionate, and culturally effective. It should be delivered or directed by well-trained physicians who provide primary care and help to manage and facilitate essentially all aspects of pediatric care. The physician should be known to the child and family and should be able to develop a partnership of mutual responsibility and trust with them.

Youth with special health care needs are neither CHILDREN nor ADULTS. Their issues and concerns are similar, but different from both. This pivotal time called youth should be a time in which the total environment supports the child in becoming an adult. The support should encourage the aspirations and expectations that lead to productive adulthood – or – if supports are absent, it can be a time of actions that ingrain doubt, confusion and lack of initiative.

 

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The HRTW Center is headquartered at the Maine State Title V CSHN Program. Activities are coordinated through the Maine Support Network's Center for Self-Determination, Health and Policy. The Center is funded through a cooperative agreement (U39MC06899-01-00) from the Integrated Services Branch, Division of Services for Children with Special Health Care Needs (DSCSHN) in the Federal Maternal and Child Health Bureau (MCHB), Health Resources and Service Administration (HRSA), Department of Health and Human Services (DHHS).
Elizabeth McGuire, HRSA/MCHB Project Officer.