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Evaluation for Topical Call January 20, 2010
Powerpoints:
- Champions, Inc (ppt)
- Community Supports for Transition (ppt)
Jack Hillyard will cover material in this power point, but will NOT be going through it slide by slide.
Handouts:
- Champions, Inc Fact Sheet (pdf)
- MCHB National Centers (pdf)
Resources:
For information in your state on Medicaid Waivers and other resources for youth in transition, contact your state’s Family to Family Health Information Center. To find that Center in your state, please see this attached pamphlet, or go to the Family Voices website at http://www.familyvoices.org/info/ncfpp/f2fhic.php (pdf)
From Speakers:
Champions for Inclusive Communities
http://www.championsinc.org/
Champions For Inclusive Communities (ChampionsInC) is an MCHB-funded national center designed to support communities in organizing services for families of children and youth with special health care needs (CYSHCN). See the System of Services slideshow on their home page.
TransCen
http://www.transcen.org/
TransCen, Inc. is a non-profit 501(c)3 organization dedicated to improving educational and employment outcomes for people with disabilities. Our work is driven by the belief that there is a job for everyone who wants one, regardless of the nature of their disability, or other barriers to employment, their need for workplace support and accommodation, or economic circumstance. Our associates develop, implement, and research innovative practices regarding school-to-adult life transition, career and workforce development, and inclusive community participation.
Paper: Providing supports to youth with disabilities transitioning to adulthood: Case descriptions from the Youth Transition Demonstration, by Richard G. Luecking from TransCen, Inc. and David Wittenburg from Mathematica Policy Research published in the Journal of Vocational Rehabilitation 30 (2009) 241–251
http://www.mathematica-mpr.com/publications/PDFs/disability/providingsupports.pdf
Centers for Medicare and Medicaid Services (CMS)
Home and Community based waivers general information:
http://www.cms.hhs.gov/medicaidstwaivprogdemopgi/05_hcbswaivers-section1915(c).asp
http://www.cms.hhs.gov/HCBS/
http://www.cms.hhs.gov/PromisingPractices/
To find state waiver info: http://www.cms.hhs.gov/MedicaidStWaivProgDemoPGI/08_WavMap.asp
Advancing Integrated Employment Outcomes through HCB Waiver Services (pdf)
The Clearinghouse for Home and Community Based Services
http://www.hcbs.org/
HCBS.org PROMOTES THE DEVELOPMENT AND EXPANSION of home and community-based services by gathering resources and tools for RESEARCH, POLICY MAKING AND PROGRAM DEVELOPMENT into this one-stop website. By facilitating the sharing of information, HCBS empowers professionals to be more effective in supporting real choice and independence for older Americans and people with disabilities.
EPSDT Services
http://www.cms.hhs.gov/medicaidearlyperiodicscrn/
The Early and Periodic Screening, Diagnostic, and Treatment (EPSDT) service is Medicaid's comprehensive and preventive child health program for individuals under the age of 21. EPSDT was defined by law as part of the Omnibus Budget Reconciliation Act of 1989 (OBRA '89) legislation and includes periodic screening, vision, dental, and hearing services. In addition, Section 1905(r)(5) of the Social Security Act (the Act) requires that any medically necessary health care service listed at Section 1905(a) of the Act be provided to an EPSDT recipient even if the service is not available under the State's Medicaid plan to the rest of the Medicaid population. These services end at age 22. Preparing for discontinuation of these services or finding adult services is an important aspect of transition for youth with special health care needs.
Disability.gov
http://www.disability.gov/
US government website connecting the disability community to information and opportunities. For Example:
Supports in community life organizations: http://www.disability.gov/community_life/disability_organizations
Other Resources:
AHEAD – Association on Higher Education And Disability
http://www.ahead.org/
AHEAD is the premiere professional association committed to full participation of persons with disabilities in postsecondary education. AHEAD dynamically addresses current and emerging issues with respect to disability, education, and accessibility to achieve universal access
Transition Resources A-Z: http://www.ahead.org/students-parents/transitions
APSE (Association for Persons in Supported Employment)
www.apse.org
APSE is the only national organization with an exclusive focus on integrated employment and career advancement opportunities for individuals with disabilities. Our new initiative, HR Connect, offers consultation services to help businesses reach out to and partner with one of the strongest labor and customer pools in the country: the disability community. APSE has chapters in 35 states and the District of Columbia. Our members come from all 50 states and Puerto Rico, as well as several foreign countries.
Centers for Independent Living
Find your state's CILs at: http://www.bcm.edu/ilru/html/publications/directory/index.html
Definition of a Center for Independent Living from Section 702 of the Rehabilitation Act of 1973, as amended: The term “center for independent living” means a consumer‑controlled, community‑based, cross‑disability, nonresidential private nonprofit agency that is designed and operated within a local community by individuals with disabilities and provides an array of independent living services.
Easter Seals Project Action - Transportation
www.projectaction.easterseals.com
Mission is to promote universal access to transportation for people with disabilities under federal law and beyond by partnering with transportation providers, the disability community and others through the provision of training, technical assistance, applied research, outreach and communication. Easter Seals Project ACTION is a national program that addresses transit accessibility issues through technical assistance, resource development and training. Funded by the Federal Transit Administration (FTA) and administered through Easter Seals, Easter Seals Project ACTION has supported research and demonstration projects to provide solutions to accessibility challenges since 1988.
Easter Seals Project ACTION supports these efforts externally through contracts and via partnerships with University Centers.
Institute for Community Inclusion:
http://www.communityinclusion.org/
ICI offers training, clinical, and employment services, conducts research, and provides assistance to organizations to promote inclusion of people with disabilities in school, work, and community activities. Website offers a variety of publications related to supports for people with disabilities.
National Center on Secondary Education and Transition (NCSET)
http://www.ncset.org/
NCSET coordinates national resources, offers technical assistance, and disseminates information related to secondary education and transition for youth with disabilities in order to create opportunities for youth to achieve successful futures. NCSET is headquartered at the Institute on Community Integration in the University of Minnesota's College of Education and Human Development.
National Collaborative on Workforce and Disability - NCWD/Youth
http://www.ncwd-youth.info/about
Guideposts for Success: http://www.ncwd-youth.info/guideposts
The 411 on Disability Disclosure: A Workbook for Youth with Disabilities
http://www.ncwd-youth.info/topic/disability-disclosure
Publications by Topic: http://www.ncwd-youth.info/topic
Publications on Transition Supports: http://www.ncwd-youth.info/topic/transition-supports includes information on Benefits Planning, Breaking down Technological Barriers, Building Infrastructure, Financial Literacy, Personal Assistance Services, Mental Health, and Disability Disclosure
National Secondary Transition Technical Assistance Center
http://www.nsttac.org/
NSTTAC will help states build capacity to support and improve transition planning, services, and outcomes for youth with disabilities and disseminate information and provide technical assistance on scientifically-based research practices with an emphasis on building and sustaining state-level infrastructures of support and district-level demonstrations of effective transition methods for youth with disabilities.
University of Washington, DO-IT
Disabilities, Opportunities, Internetworking, and Technology
https://www.washington.edu/doit/
DO-IT serves to increase the participation of individuals with disabilities in challenging academic programs and careers. It promotes the use of computer and networking technologies to increase independence, productivity, and participation in education and employment.
National Resources for Parents of Children and Youth with Disabilities https://www.washington.edu/doit/Brochures/Parents/naparent.html
University of Wisconsin Waisman Center Natural Supports Project http://www.waisman.wisc.edu/naturalsupports/
The goal of the Pathways to Independence Natural Supports project is to discover, support, and disseminate creative and promising approaches for supporting youth with disabilities to participate more fully and naturally in school, work, and community activities. Website offers videos and activities to promote natural supports.
See also the resources from the July 15, 2009 HRTW Topical Call on Ticket to Work at http://www.hrtw.org/hrtwu/calls/07-15-09_Materials.html
Center for Self Determination
http://www.centerforself-determination.com/
The Center for Self-Determination is a non-profit organization, established in 2000, operating as the primary clearinghouse, training and technical assistance source on Self-Determination in the United States and other countries. The Center is devoted to working within the public and private sector to move power and authority over resources directly to individuals with disabilities, families and allies.
Faith-Based Community Initiatives
http://www.familysupportclearinghouse.org/Newsletters/Pages/December2009.aspx
This December 2009 newsletter from the Family Support Center on Disabilities located at AED (Academy for Educational Development) and funded by the Administration on Developmental Disabilities describes a number of faith community inclusion activities.
Exercise and fitness
National Center for Chronic Disease Prevention and Health Promotion
Physical Activity Guidelines for Americans (2008) including Key Guidelines for Adults With Disabilities
http://www.health.gov/paguidelines/guidelines/chapter7.aspx
The National Center on Physical Activity and Disability
http://www.ncpad.org/
The mission of the National Center on Physical Activity and Disability (NCPAD) is to promote substantial health benefits that can be gained from participating in regular physical activity. The slogan of NCPAD is Exercise is for EVERY body, and every person can gain some health benefit from being more physically active. This site provides information and resources that can enable people with disabilities to become as physically active as they choose to be.
The Center for Research on Women with Disabilities (CROWD)
http://www.bcm.edu/crowd/?PMID=0
CROWD at Baylor College of Medicine welcomes you to our website and information resource. Our mission is to promote, develop, and disseminate information to improve the health and expand the life choices of women with disabilities.
President's Council on Physical Fitness and Sports
http://fitness.gov/
The President's Council on Physical Fitness and Sports is an advisory committee of volunteer citizens who advise the President through the Secretary of Health and Human Services about physical activity, fitness, and sports in America. Through its programs and partnerships with the public, private and non-profit sectors, the Council serves as a catalyst to promote health, physical activity, fitness, and enjoyment for people of all ages, backgrounds and abilities through participation in physical activity and sports. The twenty Council members are appointed and serve at the pleasure of the President.
- A Report of the Surgeon General Physical Activity and Health Persons with Disabilities http://fitness.gov/disab.htm
- Promoting Inclusive Physical Activity Communities for People with Disabilities (2008)
http://presidentschallenge.com/misc/news_research/research_digests/june2008.pdf
This paper describes the RAMP model—Restoring Activity, Mobility and Participation—to reflect the broad need to create a barrier-free environment. From a public health perspective, there is a logical progression through the domains that a graphic presents through the metaphor of "ramping up" to successive levels. The RAMP model consists of four components —Access, Participation, Adherence, and Health and Function—each building on the previous component and reflecting the interconnectedness between components in achieving optimal health and well-being among people with disabilities. The metaphor also reflects the logical sequencing of the four components: Access is necessary for participation, and regular participation and adherence are necessary to obtain benefits in health and function.
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