|
Evaluation for Topical Call April 21, 2010
Powerpoint:
- Celebrating the HRTW National Resource Center (ppt - 1.7 MB)
Powerpoints: Supplementary
- HRTW Programming for Family Leaders (ppt – 6.7MB)
- Shriners Hospitals for Children (ppt – 1.2MB)
Handouts:
- Block Grant Review Executive Summary (doc)
- HRTW Core Knowledge and Skills sheets (Changing Roles Families doc) (Changing Roles Youth doc)
- Summary of HRTW Surveys 2006-2008: January 2009
Reports the results of the HRTW surveys of Title V, Medical Homes, NACHRI Hospitals, Shriners Hospitals for Children, Family-to-Family Health Information Centers including services and activities, barriers to transition, and technical assistance requested. (doc)
- MCHB National Centers, from Champions Inc for 2009 and 2010 AMCHP (pdf)
Front page describes and gives websites for all National Centers which address the Six National Performance Measures, Cultural Competence and the CAHMI Data Resource Center. The back page gives examples of integrating the six National Performance Measures to Achieve Community-Based Service Systems for Children and Youth with Special Health Care Needs.
- Transition Resources of State Title V CYSHCN programs: (doc)
Document lists transition checklists, workbooks, resource lists, letters, teaching materials developed and/or recommended by state CYSHCN agencies (updated April 2010)
- Integrating Transition into the National Performance Measures (HRTW, 2007) (doc)
- Integrated NPM Activities (2009) (doc)
- HRTW National Resource Center Brief (2010) Preparing for Health Care Transition Services for Young Adults with Special Health Care Needs (doc)
- Affordable Health Care for America: What’s in it for Young Americans? Office of the Speaker, March 25, 2010, (pdf)
- Transition Collaboration Agencies (doc)
- Strengthening Transition Partnerships: Building Federal TA Center Capacity A Transition Resource Directory - Descriptions of Federally-suppoted projects and centers that focus on youth transition. (doc)
- CHOICES Clinical Guidelines for youth ages 11-21 (2001) (doc)
- Healthy People 2020 New Transition Goals (doc)
- Variables used for the Block Grant Review (2004) (doc)
- Summary of Coverage Provisions in the Patient Protection and Affordable Care Act and the HEalth Care and Education Reconciliation Act of 2010 (pdf)
- A Brief History of HRTW (doc)
Website Resources:
Please see Materials pages for all other HRTW Topical Calls HRTW-U.
Health Care Resources:
American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians-American Society of Internal Medicine. A consensus statement on health care transitions for young adults with special health care needs. Pediatrics. 2002;110:1301-1335 Supplement. http://aappolicy.aappublications.org/cgi/content/full/pediatrics;110/6/S1/1304
American Academy of Family Physicians (AAFP), American Academy of Pediatrics (AAP), American College of Physicians (ACP), American Osteopathic Association (AOA) (2007) Joint Principles of the Patient-Centered Medical Home. http://www.pcpcc.net/node/14
American Academy of Pediatrics Council on Children with Disabilities, The State of Transitions, Amy Brin, 2008
www.aucd.org/docs/transitions/AAP_Transitions_Report_Sept_2008.pdf
Paper describes the history of the transition initiative and results of a survey of pediatricians in 2007 by the AAP. Describes specific activities of specific pediatric practices and concerns of pediatricians about transitioning youth.
National Council on Disability The Current State of Health Care for People with Disabilities, September 2009
http://www.ncd.gov/newsroom/publications/2009/publications.htm,
for pdf version see: http://www.ncd.gov/newsroom/publications/2009/pdf/HealthCare.pdf
Information remains limited, but recent studies indicate that people with disabilities experience both health disparities and specific problems in gaining access to appropriate health care, including health promotion and disease prevention programs and services. This paper documents the issues and suggests policies for solutions.
Screening Resources:
See www.hrtw.org – Tools and Solutions
National Center for Medical Home Implementation: www.medicalhomeinfo.org
Screening tools for transition skills at: http://www.medicalhomeinfo.org/tools/index.html
National Center for Medical Home Improvement: www.medicalhomeimprovement.org
Bright Futures www.brightfutures.aap.org is a guide that includes health and independence building screening, assessment, and teaching guides. Bright Futures has little specific transition information but gives excellent developmental anticipatory guidance for health care providers and families. In FY2008 and FY2009, some states have had Bright Futures projects (see http://brightfutures.aap.org/integrate_state_program.html; GA, LA, ME, SC, VA, WA, AZ, FL, MA, NY, OK, WI) and are promoting use of Bright Futures screening and teaching to their states’ physicians especially through Medicaid and EPSDT.
American Medical Association’s Guidelines for Adolescent Preventive Services (GAPS) at http://www.ama-assn.org/ama/pub/physician-resources/public-health/promoting-healthy-lifestyles/adolescent-health/guidelines-adolescent-preventive-services.shtml
Jacksonville Health and Transition Services (JaxHATS) (Florida) offers transition screening tools at http://www.jaxhats.ufl.edu/
Family and Youth resources:
Family to Family Health Information Centers, Family Voices: http://www.familyvoices.org/info/ncfpp/f2fhic.php
National Center for Family and Professional Partnerships at Family Voices: www.familyvoices.org
National Center for Cultural Competence: www11.georgetown.edu/research/gucchd/nccc/
KASA - Kids as Self Advocates: www.fvkasa.org
National Youth Leadership Network: www.nyln.org/
Youth Leadership Forums: www.dol.gov/odep/programs/youth.htm and http://www.aylf.net/chapters.html
Based on a highly successful program of Youth Leadership Forums (YLF) in California, the long-term goal of the program is to replicate this training in all 50 states. Title V CSHCN agencies are often involved in planning and implementing these training programs. See NCSET brief: http://www.ncset.org/publications/viewdesc.asp?id=2845
The National Alliance on Mental Illness, NAMI, www.strengthofus.org
March 2010: A new online community where young adults living with mental health concerns can provide mutual support in navigating unique challenges and opportunities during the critical transition years from ages 18 to 25. Developed by young adults, StrengthofUs.org is a user-driven social networking community where members can connect with peers, share personal stories, creativity and helpful resources by writing and responding to blog entries, engaging in discussion groups and sharing videos, photos and other news.
Insurance Resources
Catalyst Center for Improving Financing of Care for Children and Youth with Special Health Care Needs: www.hdwg.org/catalyst/ March 2010: www.catalystctr.org
Department of Labor- Health Plan: http://www.dol.gov/dol/topic/health-plans/planinformation.htm
Government general health insurance: www.usa.gov/Citizen/Topics/Health/HealthInsurance.shtml
Community Resources
Champions for Inclusive Communities www.championsinc.org
National Dissemination Center for Children with Disabilities: www.nichcy.org
NICHY state pages of resources: www.nichcy.org/Pages/StateSpecificInfo.aspx
The National Center on Secondary Education and Transition (NCSET): www.ncset.org/
National Secondary Transition Technical Assistance Center (NSTTAC): http://www.nsttac.org/transitionstates/map.aspx
National Center for Medical Home Implementation: www.medicalhomeinfo.org/States/index.html
Other Transition Resources
Social Security Administration: www.socialsecurity.gov
Especially for youth: www.socialsecurity.gov/work/youth.html and http://www.ssa.gov/kids/
Workforce Development Department of Labor: Office of Disability Employment Policy (ODEP): www.dol.gov/odep/
Vocational Rehabilitation: www.ed.gov/about/contacts/state/index.html?src=gu
Ticket to Work: www.yourtickettowork.com/
Transportation: www.disability.gov/transportation
Housing: www.disability.gov/housing
Centers for Independent Living: www.ilru.org/html/publications/directory/index.html
National Center on Physical Activity and Disability: http://www.ncpad.org/
|
