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Evaluation
Powerpoint
Taking the “F” (fear) out of Health Care Transition for CYSHCN
The KSAs of Essential Health Care Transition Skills
[ppt]
Handouts
HRTW TOOL: Life Span Skills for Health: Transition Basics
Knowledge, Skills and Abilities for Changing Roles
For Youth – and - For Families
17 key skills are needed to prepare for health care transition. There are family and youth versions.
Checklist assessment ranges from (1) YES I can do this, (2) I want to do this (3) I need to learn how to do this, and (4) I need someone else to do this for me. This tool helps not only to assess known skills but also to identify new skills to be learned. It also identifies when a “Circle of Support” may need to be identified to assist the youth and family. It can be used by training to introduce skill areas. It should be interesting and enlightening to compare answers of the youth and their family. Tool can be used by family leaders and providers- as well as individual family and youth!
HRTW TOOL: Portable Medical Summary (Sample)
This is a one page sample portable medical summary of a youth with complex needs. The tool is snapshot of the youth’s health history, current diagnoses, and current medical support details in place. It is helpful for youth to be able to share accurate timely health history with their medical team.
The form provides areas for medication, medical history, contact information of providers and pharmacy, recent tests. It can also be used to documents disability. In a health crisis accuracy and speed of sharing data are vital. This tool can expedite EMS transport and ER/ED care. This document will talk for you when you cannot.
HANDOUT - HRTW 9 TIPS: Thriving with Health & Wellness
It is always helpful to “plan your work” so you can then “work your plan.” This handout offers a wonderfully proactive sample. Many have said this sample helps them (1) to look at the work they need to do, (2) break down that work into individual, manageable tasks, (3) set the tasks in an order to be accomplished, and (4) provide a timeline for completing the tasks that did not swamp them. Done this way, the end result is really of much greater benefit than the sum of the individual parts. Nine steps, 4 you can do within a week; 3 may take a little more time and 1 is a hard because of the emotional weight it carries, yet is necessary. Survive and thrive are the goals!
Supplemental Resources & Links
Tennessee Disability Coalition/ Family Voices Home Page
Family-Voices of Tennessee started in 1993 as a program of the Tennessee Disability Coalition and became the first state chapter formally sanctioned by the national organization in the last quarter of 2000. Family-Voices of Tennessee was one of six Family-Voices state programs during 1999-2001 to participate in a pilot program to develop Family-to-Family Health Information Centers (F2FHICs).
www.tndisability.org/familyvoices
Tennessee Disability Coalition Quarterly. Includes a range of information on disability-related issues, including transition. http://fvmiddle@tndisability.org/about_coalition/coalition_quarterly
Tennessee State MCH Profile. Association of Maternal and Child Health Programs.
Snapshot of the Tennessee State Title V Program, including contract information.
http://www.amchp.org/Advocacy/LegislationPolicy/Documents/Tennessee%202009%20State%20Profile.pdf
Homepage. Division of Maternal and Child Health, Tennessee Department of Health.
An overview of the programs and services offered through the MCH Program, including Children’s Special Services, which serves eligible children with special health care needs.
http://health.state.tn.us/MCH/index.html
Supporting Vulnerable Youth and Young Adults (2008 Report & Fact Sheet). Adolescent & Young Adult Health in Tennessee. Report and recommendations of Tennessee’s Initiative to Improve Adolescent and Young Adult Health by 2010 Committee, Tennessee Department of Health.
Report: http://health.state.tn.us/MCH/Adolescent/2006_AH_Report/AHR_Chp10.pdf
Fact Sheet: http://health.state.tn.us/MCH/Adolescent/2006_AH_Report/FactSheet_11.pdf
(For a complete list of Reports and Fact Sheets from the 13 Chapters of the 2008 Adolescent and Young Adult Health in Tennessee Report and Fact Sheets go to: http://health.state.tn.us/MCH/Adolescent/adolescent_index.htm) |
