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  Topical Call Materials: 30 July 2008
 
 

Evaluation

  • Evaluation [doc]

Resources & Links from Agencies/Programs Represented on Panel

Michigan Title V CYSHCN Program

  • Overview: Michigan Early Adult Transition Task-Force (doc)
  • Mission Statement (doc)
  • Membership guidelines (doc)
  • Committee Decision Making guidelines (doc)
  • Michigan Title V CYSHCN Program website, includes a link for information on transition to adulthood. Transition link includes Early Adult Transition Task-Force newsletters: www.michigan.gov/cshcs
  • E-mail address for all things related to EATT is: DCH-EATT@michigan.gov

New York Title V CYSHCN Program

North Carolina Title V CYSHCN Program

Mountain States Genetics Regional Collaborative (MSGRC)

Utah Title V CYSHCN Program

Other Resources for Youth Advisory Councils – 2008

  • See Resources for HRTW Topical Call November 2006 at
    http://www.hrtw.org/hrtwu/calls/061103_Materials.html

  • National Youth Leadership Network (NYLN)
    (Website: http://nyln.org/) Dedicated to advancing the next generation of disability leaders. Includes extensive resources, newsletters, and membership information.

    NYLN Press Release: "Rural People, Rural Policy" Grant through W.K. Kellogg Foundation (doc)

  • Administration on Developmental Disabilities TECHNICAL ASSISTANCE TRAINING INSTITUTE, Washington, DC on Youth Advisory Councils Powerpoint from July 11, describing YACs in states and how to develop them
    http://www.addyic.org/2008ADDTAI/documents/presentations/PPT%20Presentations/BO_III_YAC%20Panel.pdf
    Also at: http://www.addyic.org/2008ADDTAI/agenda.php (agenda with links)

  • National Council on Disabilities YAC
    http://www.ncd.gov/newsroom/advisory/youth/youth.htm
    (Website has extensive bylaws and minutes of meetings and reports from 2003 through mid-2008) The Committee provides advice to the National Council on Disability (NCD) on various issues, such as NCD’s planning and priorities. NCD is seeking this type of input in order to assure that NCD’s activities and policy recommendations respond to the needs of youth with disabilities.

  • The National Consortium on Leadership and Disability for Youth (NCLD-Youth)
    http://www.ncld-youth.info/

    www.ncwd-youth.info/assets/guides/quick_reference_guides/youth_development.doc
    Paper on developing youth groups.

    NCLD-Youth is a youth-led resource, information, and training center for youth and emerging leaders with developmental disabilities, housed at the Institute for Educational Leadership and funded by the Administration on Developmental Disabilities. We are a project led by the next generation of young leaders with disabilities for the next generation of young leaders with disabilities-- taking a positive development approach to working with the next generation of disability community leaders, and developing materials to better prepare them for the transition to adulthood, and leadership. By utilizing the five areas of youth development/leadership—learning, connecting, thriving, working, and leading—NCLD/Youth strives to support and promote youth and emerging leaders in the disability community.

  • Children’s Hospital of Philadelphia (CHOP) LEND program YAC
    http://www.chop.edu/consumer/jsp/division/generic.jsp?id=81088
    The Youth Advisory Council (YAC) is comprised of adolescents 12 - 18 years old who are either current or former patients at CHOP, and who serve to advise the hospital administration and health care professionals regarding the patients' perspectives on programs, policies and services here. YAC recruits teens who are interested in having an impact upon their health care setting, and provides a forum for them to voice their concerns and opinions regarding their needs. The Youth Advisory Council meets on the second Monday of the month (September-June) from 5:30 p.m. to 7:30 p.m., with additional committee work as needed. Past projects have included a skit presentation to resident physicians concerning teen issues ("Yakity-Yak, We Talk Back!"), conducting a survey of patients regarding hospital meals, advising architects and planners about pending construction, sponsoring a special monthly evening recreation event for inpatients, and more. LEND fellows' primary responsibility in the past involved the supervision of YAC members in planning and providing the monthly recreation events

  • Denver Children’s Hospital’s Youth Advisory Council
    http://www.thechildrenshospital.org/visit/bettervisit/yac/index.aspx
    The Youth Advisory Council (YAC) is a group of children, teens and siblings who have the desire to create a better world for pediatric patients at The Children's Hospital! With the motto "We Make Things Happen", the council focuses on both inpatients and outpatients and allows for the children to have a voice around the hospital. The council has achieved a huge amount of success in their first four years of activity as they continue to set goals for the future. Members of the YAC are patients and siblings of patients that have been hospitalized at Children’s Hospital. There can be up to twelve members on the council at one time and ages that range from 8-18 years old.

    Youth Advisory Council Mission and Goals
    • To discuss issues that are important to children, teens and siblings during hospitalization and/or visits to the Outpatient Clinics at The Children's Hospital
    • To provide feedback and suggestions on hospital programs and projects
    • To assist at hospital special events and/or meetings
    • To prepare an annual report
    • To give the children a voice and to allow the children to be heard
    • To advise on the programs for children, teens and siblings
    • To assist in environmental design projects

  • Kansas Foster Youth Program Handbook for State and Regional YACs
    http://www.srskansas.org/CFS/Program%20Descriptions/kyac0108.pdf

  • Tennessee Foster Youth YAC (Nashville area)
    http://www.tnfosteryouth.org/
    The Tennessee Youth Advisory Council is a group of current and former foster youth from Nashville and the surrounding counties that work to improve the lives of youth and the foster care system. We decided that current and former foster youth needed a website that they could visit to find information about services, resources, and supports in order to navigate the foster care system. Hopefully, this website will be able to address some of the questions and issues you may face with the system
YACs with broader community focus
  • Washington State
    http://lyac.leg.wa.gov/
    Our law-makers in Olympia agree that the distinct needs of young people in Washington must be a priority. The Legislative Youth Advisory Council (LYAC) was created to help legislators address these needs through the direct input of Washington’s youth.
    We are a group of 22 people aged 14 to 18 who discuss issues that Washington youth care about, and make recommendations to the legislature based on what we feel most people our age would prefer. We meet up to six times per year in locations around Washington, and every year we hold an Action Day in Olympia in to meet with legislators and testify on bills. Legislation was passed in 2005 which established LYAC. In 2007, another bill was passed to extend LYAC through 2009 as well as change the appointment process. Currently, LYAC reviews applications and recommends applicants to the Lieutenant Governor, who makes final appointments. Eleven members are replaced each July and serve two year terms

  • Nebraska’s Answers for Families
    http://www.answers4families.org/family/youth-transition
    YAC highlights and application form, and links to a variety of transition resources

  • Family Voices California YAC
    http://www.familyvoices.org/states.php?state=CA

    FVCA started a Youth Advisory Council this past year for youth ages 14-24 yrs. Youth participants meet via conference call once a month and face-to-face 4 times per year. In these meetings to date they have developed ground rules for participation and identified projects to work on. Currently, the Youth Advisory Council is working on developing a survey of youth with special health care needs to obtain information about their needs and experiences of youth and the agencies serving them. This is a dynamic group of young people who speak up and take very seriously their role on the Advisory Council!

  • Williamsburg, VA – James City County YAC
    http://www.jccegov.com/communityservices/youth-advisory.html
    The purpose of the Youth Advisory Council is to serve as a link between the youth of James City County youth and their government. We are the James City County Youth Advisory Council, which consist of 15 student members representing Grades 8 - 12. We represent all area middle and high school students. We are a very well diverse group by gender, race, and where we live geographically in the County. We are the eyes and ears that represent all youth from birth to 18 years of age.

    Work of the Council includes:
    • serving as a liaison between the James City County Office of Community Services and the youth of James City County;
    • providing a platform for County youth to present their ideas, needs, and suggestions;
    • enhancing awareness of needs, problems, and issues affecting the youth of James City County;
    • performing annual community services projects; and
    • meeting regularly with the James City County Board of Supervisors to discuss issues important to local youth.

  • Lewiston, Maine
    http://www.ci.lewiston.me.us/lyac/
    The 2008-09 membership of the Lewiston Youth Advisory Council (LYAC) was appointed on July 15, 2008, by Mayor Laurent F. Gilbert Sr. The appointed youth had completed an application/interview process and will serve a one-year term. The youth council was established by the Lewiston City Council in October 2001, and the charter group first met in September of 2002. This seventh-year membership consists of nine returning members and five new members. "The LYAC shall serve as an advisory council to the Lewiston City Council in regards to community issues affecting youth and shall serve as a liaison between the youth of the community and the City. The LYAC shall enable youth to work toward goals that empower all of the community's youth and to undertake service projects that enhance the community."

  • Tualatin, Oregon
    http://www.ci.tualatin.or.us/departments/communityservices/parks/teens/yac.cfm
    The Tualatin Youth Advisory Council advises the Tualatin City Council on issues that affect youth in the community, serves as a communication link for youth to government, business, and entire community on a variety of subjects, identifies and advocates for the needs of youth in our community, identifies and carries out events and activities for the community which are important to youth and creates and fosters cultural relations in the Tualatin community. The YAC hosts seasonal activities for youth in the Tualatin community, such as the Haunted House, Tualafest or the Crawfish Teen Dance. New YAC members will help in planning and running these events. They can contribute their ideas for improvements to existing programs and help the YAC brainstorm ideas for new events this year. The YAC also makes monthly presentations to the Tualatin City Council to keep the city officials informed about issues that are important to youth. New members will have the unique opportunity of presenting their ideas to the City Council.
    Be aware! Serving as a YAC member is not always easy. It requires a significant time commitment. YAC members are required to attend weekly meetings on Thursday from 6:00 - 7:00pm. YAC members also contribute additional time in preparing for and running events.

  • Columbus, Georgia
    http://www.columbusga.com/YAC/yac.htm
    To broaden the scope of youth leadership in Columbus, Georgia through volunteerism, service and initiatives that are directed towards allowing youth input into policy issues, identifying youth issues, and participating in the development of positive solutions.

  • National Youth Leadership Council (sponsored by State Farm Companies Foundation, St. Paul, MN)
    http://www.nylc.org/about_youthadvisory.cfm
    For more than two decades, NYLC has led a movement linking youths, educators, and communities to redefine the roles of young people in society. That movement is service-learning, and it empowers youths to transform themselves from recipients of information and resources into valuable, contributing members of a democracy. The Youth Advisory Council is a team of young servant-leaders, ages 14-21, recognized for their dedication to promoting youth leadership, service-learning, youth-adult partnerships, and diversity. YAC advises NYLC on its programming and brings a valuable youth perspective to the organization's work.

  • Kentucky Child Now Youth Advisory Council
    http://www.kychildnow.org/youthAdvisoryCouncil/
    Kentucky Child Now is committed to modeling youth involvement within our own organization and creating opportunities for young people to be involved in meaningful roles within their school, community and youth-services. The Youth Advisory Council (YAC) is made up of fifteen youth, ages 13-24, from all across the state. The YAC members work with the Board of Directors on decisions and policies that impact Kentucky's youth; they provide leadership for the annual Great Kids Summit; they participate in state and local community service projects; and they promote youth involvement in their school and community. Members are recruited every August through an application process. Since its inception in 2000, Kentucky Child Now (KCN) has emerged as a national leader in the work to guarantee that each and every one of our youth experience the five fundamental resources they need to succeed in life: 1) caring adults; 2) safe places; 3) a healthy start; 4) marketable skills; and 5) opportunities to serve...the Five Promises! Research shows that providing youth with the Five Promises not only promotes positive behaviors, but also prevents negative behaviors.
    As the state affiliate and lead agency for Colin Powell"s America’s Promise (www.americas promise.org), Kentucky Child Now is working proactively on statewide and grassroots levels to ensure that young people are engaged and fully prepared for adulthood. Every aspect of our work aligns with the Five Promises and addresses the need to engage young people as resources and leaders.

  • Minnesota's America's Promise Youth Advisory Council
    http://mnyouth.net/en/Youth_Voice_Youth_Ac/Minnesota_s_Youth_Ad/default.aspx

    Member Qualifications

    - Young people ages 14-18
    - Living in the state of Minnesota
    - Youth who have unique ideas and experiences
    - Leadership skills and a commitment to your peers and community
    - Can commit to a full year as a MNYAC Member
    Members of MNYAC:
    - Play a crucial role in ensuring that young people’s voices and ideas are heard in MN.
    - Provide input to adult leaders on important issues including after-school programs, mentoring, health care, and school success.
    - Work together to create and implement local and statewide projects to address the issues that YOU think are most important to youth.
    - Promote youth leadership and youth service to other young people in MN.
    - Advise and guide the work of two statewide youth development organizations.

  • Nevada Governor’s Youth Advisory Council
    http://health.nv.gov/index.php?option=com_content&task=view&id=130&Itemid=221
    The purpose of the Governor's Youth Advisory Council is to make a difference in our communities and state by increasing awareness of youth issues through education, by advising state officials, and by working with youth in our communities. The Governor's Youth Advisory Council, or GYAC, was established in 1996. The Council advises the Governor, the Nevada State Health Division, and other agencies on issues of concern to Nevada's youth, issues like teen pregnancy prevention and suicide prevention.
    The Governor appoints eleven youth from across the state. The members range in age from 15-21 and serve a two year term. The Council meets at least four times a year to discuss teen health issues.

  • Youth Service America
    http://www.ysa.org/Home/tabid/37/Default.aspx
    YSA seeks to improve communities by increasing the NUMBER and the DIVERSITY of young people serving in SUBSTANTIVE roles. Has a national Youth Council.
    Global Youth Service Day 2009 is April 24-26.

  • Or Google "Youth Advisory Council" and find more examples
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The HRTW Center is headquartered at the Maine State Title V CSHN Program. Activities are coordinated through the Maine Support Network's Center for Self-Determination, Health and Policy. The Center is funded through a cooperative agreement (U39MC06899-01-00) from the Integrated Services Branch, Division of Services for Children with Special Health Care Needs (DSCSHN) in the Federal Maternal and Child Health Bureau (MCHB), Health Resources and Service Administration (HRSA), Department of Health and Human Services (DHHS).
Elizabeth McGuire, HRSA/MCHB Project Officer.