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Evaluation for Topical Call November 4, 2009
Powerpoints:
- Clark Deschenes TIP Presentation [pdf]
- Richard Chapman's Presentation: Transition for Individuals with Physical Disabilities [ppt]
Handouts:
- NAMI’s Online Community/Social Networking Website for Transition-Age Youth, 2010
Transition Age Project One Pager v2 [doc]
- Bipolar Disorder: Educational Implications for Secondary Students (2007) www.nasponline.org/resources/principals/bipolar.pdf
National Association of School Psychologists
Article Bipolar–Education Implications -Secondary [pdf]
- Fact Sheet on Mental Health During High School Years (2009)
http://www.betterhighschools.org/docs/NHSC_MentalHealthFS.pdf
This fact sheet on mental health, substance abuse, and dropout prevention provides a snapshot of the current issues surrounding dropout factors among students who are identified with emotional disturbances, and offers mental health resources that may assist this population with remaining in high school.
NHFS_MentalHealthFS [pdf]
Tools:
Bright Futures - 3rd Edition (2008)
http://brightfutures.aap.org
Bright Futures is a national health promotion and disease prevention initiative that addresses children's health needs in the context of family and community. In addition to use in pediatric practice, many states implement Bright Futures principles, guidelines and tools to strengthen the connections between state and local programs, pediatric primary care, families, and local communities. Whether you are a health care or public health professional, a parent, or a child advocate, Bright Futures offers many different resources for your use in improving and maintaining the health of all children and adolescents
Mental Health Assessment: http://brightfutures.aap.org/pdfs/Health_Promotion_Information_Sheets/mentalhealth.pdf
Other Bright Futures 3rd Edition Resources: http://brightfutures.aap.org/3rd_Edition_Guidelines_and_Pocket_Guide.html
http://brightfutures.aap.org/bright_futures_power_point_presentations.html
Bright Futures in Practice: Mental Health (2002) www.brightfutures.org/mentalhealth
A 2-volume set of manuals (on web). Chapters consider the mental health of children in a developmental context, present information on early recognition and intervention for specific mental health problems and mental disorders, and provide a tool kit with hands-on tools for health professionals and families for use in screening, care management, and health education
PACER Center
Ready To Manage Your Own Mental Health Care-Checklist
www.cmhn.org/checklist.pdf
PACER Center’s Mental Health Checklist for youth with mental health conditions.
Aetna Care Management Plan - Bipolar [doc]
Sample 504 Plan - Bipolar disorder [doc]
504 Plan for Irritable Bowel Syndrome [doc]
Why Johnny and Jenny Can’t Write: Disorders of Written Expression and Children With Bipolar Disorder The Bipolar Child Newsletter, June 2004, Vol. 17.
http://www.bipolarchild.com/Newsletters/0406.html
Resources:
From Speakers:
GAO Report: Young Adults With Serious Mental Illness: Some States and Federal Agencies Are Taking Steps to Address Their Transition Challenges
GAO-08-678 June 23, 2008
http://www.gao.gov/products/GAO-08-678
Due to concerns about young adults with serious mental illness transitioning into adulthood, GAO was asked to provide information on (1) the number of these young adults and their demographic characteristics, (2) the challenges they face, (3) how selected states assist them (CT, MD, MA, and MS), and (4) how the federal government supports states in serving these young adults and coordinates programs that can assist them.
National Alliance on Mental Illness (NAMI) www.nami.org
From its inception in 1979, NAMI has been dedicated to improving the lives of individuals and families affected by mental illness. Dedication, steadfast commitment and unceasing belief in NAMI's mission by grassroots advocates have produced profound changes. NAMI's greatest strength is the dedication of our grassroots leaders and members. We are the families, friends and individuals that serve to strengthen communities across the country.
Grading the States 2009: A Report on America’s Health Care System for Adults with Serious Mental Illness
Mental Health Services and Choosing a College: Striking a Balance
NAMI Beginnings Newsletter: http://www.nami.org/Content/ContentGroups/CAAC/NAMI_Beginnings_Magazine.htm
See particularly
Summer, 2006, Negotiating the Transition-Age Years whole issue
Spring 2008: The Ultimate Challenge: Treatment Adherence in Transition-Age Youth by Ken Duckworth, MD, Medical Director, National Alliance on Mental Illness (p 10)
National Network on Youth Transition for Behavioral Health at the University of South Florida http://nnyt.fmhi.usf.edu/
The Mission of the NNYT is to improve practices, systems, and outcomes for transition-age youth and young adults (14-29 years of age) with emotional and/or behavioral difficulties (EBD).
Resources - see particularly Toolbox materials and Issue briefs from the Partners for Youth Transition (PYT) initiative (2002-2006) http://ntacyt.fmhi.usf.edu/resources/issue-briefs.cfm
Transition to Independence:http://tip.fmhi.usf.edu/
The mission of the Transition to Independence Process (TIP) system is to assist young people with emotional and/or behavioral difficulties (EBD) in making a successful transition to adulthood with all young persons achieving, within their potential, their goals in the transition domains of education, employment, living situation, and community life.
New handbook edited by Hewitt B. “Rusty” Clark, PhD & Deanne K. Unruh, PhD (2009) Transition of Youth and Young Adults with Emotional or Behavioral Difficulties: An Evidence-Supported Handbook, Brooks.
[pdf]
Other Resources:
American Academy of Child and Adolescent Psychiatry
http://www.aacap.org/
Between 7 and 12 Million American youth suffer from mental, behavioral, or developmental disorders at any given time. The AACAP is the leading national professional medical association dedicated to treating and improving the quality of life for children, adolescents, and families affected by these disorders. Website offers a wealth of information for physicians, allied professionals, and families.
American Academy of Pediatrics – Behavioral and Mental Health Resources
http://www.aap.org/healthtopics/behavmenthlth.cfm
The Behavioral and Mental Health Web pages address child and family emotional well-being and coping. Look here for information on raising emotionally healthy children and coping with common behavioral and mental health conditions and stressful life situations
AAP’s Mental Health Initiative - Children’s Mental Health in Primary Care: http://www.aap.org/commpeds/dochs/mentalhealth/
One in five children have a diagnosable mental health disorder that requires intervention or monitoring and interferes with daily functioning. While many children with mental health disorders are not being diagnosed, primary care clinicians have been identifying children with emotional and behavioral disorders at an increasing rate. The need for primary care clinicians to manage children with mental health concerns only will continue to increase in the future. Primary care clinicians are, and will continue to be, an important first resource for parents who are worried about their child's behavioral problems. See especially the Chapter Action Kit.
American Psychiatric Association
http://www.psych.org/
Resources and links from the APA focusing on the adult population. See also http://www.healthyminds.org/
Bazelon Center for Mental Health Law
http://www.bazelon.org/publications/movingon/index.htm
The Center envisions an America where people who have mental illnesses or developmental disabilities exercise their own life choices and have access to the resources that enable them to participate fully in their communities.
Moving On: Federal Programs to Assist Transition-Age Youth with Serious Mental Health Conditions (Updated 2008)
Myriad federal programs can address the wide range of needs of youth with serious mental health conditions who are transitioning into adulthood. In this November 2008 update, the Bazelon Center identifies 56 programs, run by 20 or more different agencies in nine departments of the federal government. Moving On is a collection of fact sheets on these programs. Each offers information about the program’s purpose, services and funded activities, the administering federal agency, grantee and beneficiary eligibility, and a brief assessment of the program’s impact. The fact sheets are grouped under 12 categories, each a PDF document
Centers for Disease Control (CDC) MMWR Report-The Role of Public Health in Mental Health Promotion, September 2, 2005 / 54(34);841-842
http://www.cdc.gov/mmwr/preview/mmwrhtml/mm5434a1.htm
Mental health is integral to overall health and well-being and should be treated with the same urgency as physical health. Mental illness can influence the onset, progression, and outcome of other illnesses and often correlates with health risk behaviors such as substance abuse, tobacco use, and physical inactivity. Depression has emerged as a risk factor for such chronic illnesses as hypertension, cardiovascular disease, and diabetes and can adversely affect the course and management of these conditions. CDC has mobilized multiple efforts to assess and address mental health and well-being. Data on mental health, risk behaviors, and co-morbidity of mental illness and chronic disease are collected through various national surveillance initiatives. CDC also collaborates with the World Federation for Mental Health to address stigma, a pervasive barrier to seeking treatment, through promotion of public awareness campaigns, such as World Mental Health Day. As the nation's premier public health agency, CDC is well-positioned to expand its role in safeguarding mental health by supporting the efforts of other health agencies, such as the Substance Abuse and Mental Health Services Administration and the National Institute of Mental Health, through continued surveillance of mental illness and risk behaviors in the U.S. population and promotion of mental health across the life span.
Child Trends
Institute of Medicine www.iom.edu
Established in 1970 under the charter of the National Academy of Sciences, the Institute of Medicine provides independent, objective, evidence-based advice to policymakers, health professionals, the private sector, and the public. The mission of the Institute of Medicine embraces the health of people everywhere.
Adolescent Health Services: Missing Opportunities examines the health status of adolescents and reviews the separate and uncoordinated programs and services that currently exist in multiple public and private health care settings. The book provides guidance to administrators in public and private health care agencies, health care workers, guidance counselors, parents, school administrators, and policy makers on investing in, strengthening, and improving an integrated health system for adolescents. Portions can be downloaded free from: http://www.nap.edu/catalog.php?record_id=12063
Journal of Adolescent Health, September 2008 (Vol 43, Issue 3, PP 260-267)
Abstract at: http://www.jahonline.org/article/PIIS1054139X08001080/abstract
Aarons, Monn, Leslie, Garland, Lugo, Hough & Brown, Association Between Mental and Physical Health Problems in High-Risk Adolescents: A Longitudinal Study
Results: Mood and disruptive behavior disorders were related to cumulative health problem incidence, as well as aggregate measures of health problems and severe health problems. In addition mood disorder diagnosis was associated with higher rates of infectious diseases, respiratory problems, and weight problems. Disruptive disorder diagnosis was related to higher rates of risk behavior–related health problems. Conclusions: The present work extends the research on the relationship between mental and physical health problems to adolescents served in the public sector, who are at especially high risk for behavioral and emotional problems. Potential mechanisms by which mental health problems may impact health problems are discussed. We suggest the development of effective interagency cooperation between medical and mental health systems to improve the care of youth with comorbid mental and physical disorders.
Konopka Institute at University of Minnesota http://www.med.umn.edu/peds/ahm/programs/konopka/home.html
Inspired by the pioneering work of Dr. Gisela Konopka, the Konopka Institute's goal is to get reliable information into the hands of everyone who is in a position to help adolescents.
See particularly: May 2003 Growing Absolutely Fantastic Youth: Mental Health is Public Health: http://www.med.umn.edu/peds/ahm/prod/groups/med/@pub/@med/documents/asset/med_49176.pdf see Mental Health Action Wheel as modification of the Public Health Action Wheel (10 Essential Services of Public Health) www.health.gov/phfunctions/public.htm
Mental Health America (formerly National Mental Health Association)
www.nmha.org/
Mental Health America works to create a just, humane and healthy society in which all people are accorded respect, dignity and the opportunity to achieve their full potential free from stigma and prejudice. Mental Health America improves the mental health of all Americans through advocacy, education, research, and service. Web site offers information on conditions, research reports, legislative and policy issues, and resources.
National Adolescent Health Information Center
http://nahic.ucsf.edu/
The goals of NAHIC are to serve as a national resource for adolescent health information and research; and to assure the integration, synthesis, coordination and dissemination of adolescent health-related information.
Data on adolescent health and mental health and access to care can be found at
http://nahic.ucsf.edu/index.php/data/C1 including:
Trends in Adolescent and Young Adult Health in the United States (2009)
Tina Paul Mulye, M.P.H.; M. Jane Park, M.P.H.; Chelsea D. Nelson, B.A.a,
Sally H. Adams, Ph.D; Charles E. Irwin, Jr., M.D.; and Claire D. Brindis, Dr.PH. (2009) Trends in Adolescent and Young Adult Health in the United States. Journal of Adolescent Health, 45, 8–24
http://nahic.ucsf.edu/index.php/nahic/article/trends_in_adolescent_and_young_adult_health_in_the_united_states/
The Mental Health of Adolescents: A National Profile, 2008
Park, M.J., Paul Mulye, T., Adams, S.H., Brindis, C., & Irwin, C.E., Jr. (2006). The health status of young adults in the U.S. Journal of Adolescent Health, 39(3), 305-317.
http://nahic.ucsf.edu/index.php/data/article/the_mental_health_of_adolescents_a_national_profile_2008/
Health Care Access and Utilization, Adolescents and Young Adults, 2008 http://nahic.ucsf.edu/index.php/publications/article/health_care_access_utilization_fact_sheet
National Center for Children in Poverty, Columbia University
http://nccp.org/publications/pub_673.html
Challenges and Opportunities in Children’s Mental Health: A View from Families and Youth by Sarah Dababnah and Janice L. Cooper, July 2006
Children and youth with mental health problems and their families need the appropriate skills, tools, services, and supports to reach their full potential as productive, contributing citizens. Quality mental health services and supports can significantly improve their ability to attain school success, mental health, and social and emotional well-being, to maintain healthy relationships, to remain in stable living situations, and to stay out of jail and the juvenile justice system. This report, based on a meeting of youth and family members of children and youth who experience mental health problems, highlights how family-driven and youth-guided values and frameworks can improve research, policy, and practice and ultimately result in better care and healthier children and youth. The major take-home message is that a strong family-driven and youth-guided perspective in research, policy, and practice propels more effective, responsive service delivery systems.
National Collaborative on Workforce and Disability: NCWD/Youth
http://www.ncwd-youth.info
NCWD/Youth is your source for information about employment and youth with disabilities. Our partners — experts in disability, education, employment, and workforce development — strive to ensure you will be provided with the highest quality, most relevant information available
Several Briefs about youth with disabilities are available at http://www.ncwd-youth.info/type/brief, specifically:
Helping Youth with Mental Health Needs Avoid Transition Cliffs: Lessons from Pioneering Transition Programs (2009) http://www.ncwd-youth.info/information-brief-24
National Federation of Families for Children’s Mental Health
www.ffcmh.org
Through a family and youth driven approach, children and youth with emotional, behavioral and mental health challenges and their families obtain needed supports and services so that children grow up healthy and able to maximize their potential.
National Institute for Health Care Management
Strategies to Support the Integration of Mental Health into Pediatric Primary Care (2009)
http://nihcm.org/pdf/PediatricMH-FINAL.pdf
Paper provides an overview of research and policy trends that support integration of mental health into primary care. Conclusions and selected resources on children's mental health care are provided. The paper is published with support from MCHB.
National Institute of Mental Health (NIMH)
www.nimh.nih.gov/
The mission of NIMH is to transform the understanding and treatment of mental illnesses through basic and clinical research, paving the way for prevention, recovery and cure.
National Technical Assistance Center for Children’s Mental Health (NTAC)
http://gucchd.georgetown.edu/67211.html
NTAC has taken a leadership role in addressing the mental health needs of children, youth and their families at the policy, research, training/consultation and direct service levels. NTAC has provided the vision, leadership, knowledge base, to the field to build comprehensive community service delivery systems for children with mental health and/or substance abuse needs, and their families. The National Technical Assistance Center works with states, tribes, communities and families and offers a range of training and technical assistance opportunities, publications, and informational resources. NTAC is a component of the Georgetown University Center for Child and Human Development (GUCCHD) and is housed within the Department of Pediatrics of the Georgetown University Medical Center. Other resources for Mental Health at Georgetown Center can be found at: http://gucchd.georgetown.edu/64273.html
Conference Calls
http://gucchd.georgetown.edu/training/78174.html
The National Technical Assistance Center for Children's Mental Health is sponsoring monthly series of topical calls. The conference calls cover important and emerging trends in the mental health field. Presentations from expert resource persons are followed by open discussion in order for all participants to ask questions and enrich the conversation.
President’s New Freedom Commission on Mental Health
Achieving the Promise: Transforming Mental Health Care in America
http://www.mentalhealthcommission.gov/reports/reports.htm
Mental illnesses rank first among illnesses that cause disability in the United States, Canada, and Western Europe. This serious public health challenge is under-recognized as a public health burden. In his charge to the Commission, the President directed its members to study the problems and gaps in the mental health system and make concrete recommendations for immediate improvements that the Federal government, State governments, local agencies, as well as public and private health care providers, can implement.
Research & Training Center on Family Support and Children’s Mental Health at Portland State University, Oregon
www.rtc.pdx.edu
Center is dedicated to promoting effective services for families and their children with emotional, behavioral or mental health disorders. It offers a wide variety of publications and resources for professionals, families and youth on research, data, and promising practices for services for people with mental health conditions. On October 1, 2009, researchers from Portland State University’s Regional Research Institute and School of Social Work have been awarded a 5-year, $4 million grant to create and sustain The Rehabilitation Research and Training Center for Pathways to Positive Futures: Supporting Successful Transition for Youth and Young Adults with Serious Mental Health Conditions. The Center will be funded through September 2014. The RTC for Pathways to Positive Futures aims to improve the lives of young people, ages 14-30, who have serious mental health conditions. The Center will work toward this goal through rigorous research, targeted training and technologically sophisticated dissemination. Its efforts will be guided by a philosophy of positive youth development and recovery, and be continuously informed and advised by the voices of young people and other community members.
Focal Point Summer 2009: Youth Empowerment and Participation in Mental Health Care
This issue of Focal Point highlights a number of successful and innovative efforts to promote youth voice and youth empowerment. Many of the articles are authored by or include contributions from youth who are directly
involved in the featured programs. Download the entire issue or individual articles from http://www.rtc.pdx.edu/pgFPS09TOC.php Other issues of Focal Point address transition: Transition (Spring, 2001) including best practices in mental health; Resilience and Recovery (Summer, 2005), Strengthening Social Support (Winter, 2006), and Workforce (Winter, 2008).
Mental Health Youth Bill of Rights: The Time for Youth Voice is Now
As a part of the 2009 Portland National Youth Summit, young adult leaders from across the United States drafted a Mental Health Youth Bill of Rights. Their vision is that this Mental Health Youth Bill of Rights will be adopted by organizations such as Youth MOVE and SAMHSA and clearly displayed in every doctor's office, counseling center, and organization that services youth, ages 14-25, with mental health needs. In an effort to strengthen this document, Youth Summit participants are asking for additional feedback and support from anyone involved in the mental health network - professionals, consumers, allies, etc.
http://www.rtc.pdx.edu/FeaturedDiscussions/pgFD00main.php
Robert Wood Johnson Foundation - Caring Across Communities
15 sites across the United States are developing model mental health programs that engage schools, families, students, mental health agencies and other community organizations to build effective, easily-accessed services for children and youth.
- Partnering with Parents and Families to Support Immigrant and Refugee Children at School
http://www.rwjf.org/pr/productpreview.jsp?id=45468
This paper outlines model programs that engage communities and community organizations to build effective and easily-accessible mental health services for children and youth. Some of the issues addressed in this paper include: The impact of the immigrant and refugee experience; partnering with immigrant families to support mental health; offering school-based mental health services; and the changing face of American classrooms
SAMHSA’s National Mental Health Information Center
http://mentalhealth.samhsa.gov/
SAMHSA is the federal agency charged with improving the quality and availability of prevention, treatment, and rehabilitative services in order to reduce illness, death, disability, and cost to society resulting from substance abuse and mental illnesses.
- Practice Guidelines: Core Elements for Responding to Mental Health Crises. HHS Pub. No. SMA-09-4427. Rockville, MD: Center for Mental Health Services, Substance Abuse and Mental Health Services Administration, 2009. SAMSA Highlights Mental Health Crisis Responses Nov 2009 [doc]
The entire piece can be found at http://download.ncadi.samhsa.gov/ken/pdf/SMA09-4427.pdf
- Successful Systems of Care - "Working Together to Help Youth Thrive in Schools and Communities"
The Substance Abuse and Mental Health Services Administration (SAMHSA) has released a report showing systems of care in communities really are successful. The report found that significant school and clinical improvements occurred among many youth within 12 months of their enrollment in community-based systems of care that include mental health programs. The report can be found athttp://www.samhsa.gov/newsroom/advisories/0905064401.aspx
SAMHSA Healthy Transitions Initiative 2009
http://www.samhsa.gov/newsroom/advisories/090924youth1252.aspx
SAMHSA Awards $16.8 Million in State and Community Partnership Grants for Healthy Transitions Initiative for Youth with Serious Mental Health Challenges (September 2009)
The Substance Abuse and Mental Health Services Administration (SAMHSA) announced that it is awarding grants totaling almost $16.8 million over five years to states for integrated home- and community-based services and supports for youth and young adults with serious mental health challenges and their families. The Healthy Transitions Initiative will develop or build upon existing systems to provide these youth and their families with educational, employment, mental health and other services designed to enhance their well being and ensure their successful transition to adulthood and independence. The grantees are in Georgia, Maine, Maryland, Missouri, Oklahoma, Utah, and Wisconsin.
SAMHSA Research, Training and Technical Assistance Centers
http://mentalhealth.samhsa.gov/publications/allpubs/ken95-0010/default.asp
These Research, Training, and Technical Assistance Centers are supported by the Center for Mental Health Services. Services may include technical assistance, information and referrals, on-site consultation, training, library services, publications, annotated bibliographies, and other resources. Many services are available free of charge, but in some cases, charges may apply.
Surgeon General’s Conference on Children’s Mental Health September 2000
http://www.surgeongeneral.gov/topics/cmh/childreport.html
University of Kansas Transition Coalition
http://transitioncoalition.org/transition/index.php
Providing online information, support, and professional development on topics related to the transition from school to adult life for youth with disabilities.
Minimodules on transition issues, including Mental Health Services and Youth with Emotional and Behavioral Disabilities http://transitioncoalition.org/transition/section.php?pageId=83
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