Resources for Building Data Capacity: Translating National Transition Policy into Practice; SSDI Grantee Meeting, October 2007.

Measuring and monitoring youth transition experiences and outcomes are critical functions that provide a baseline against which policy and program staff, youth and their families, and other stakeholders can assess needs and evaluate the effectiveness of their efforts. Click on the following for an annotated list and links to respected data sources.

• Data to Know – Youth
  (Includes links to state-specific SSI data for children & youth and other youth-focused data sets)
  
• Data to Know – Disability/General
  (Includes links to data sets for education; employment/disability; health care; systems & services; vocational rehabilitation; and tools for youth involvement)
• Data to Know – Systems & Services
• (Includes links to federal data sets and other data sets maintained by child, health, & disability associations, including youth surveys)
• Data to Know – Health Care
  (Includes links to a number of governmental and foundation-sponsored data sets, including the Annie Casey Kids Count; National Center for Health Statistics; National Health Interview Survey; National Adolescent Health Information Center, Substance Abuse & Mental Health Services Administration; Family Voices; CAHMI; National Longitudinal Study of Adolescent Health, etc.)

HRTW National Resource Center Questionnaires Medical Home & Transition [word] [pdf]
Summary Findings as of March 2007