HRSA ORGANIZATIONAL CHART
www.hrsa.gov/orgchart.htm
HRSA / Maternal and Child Health Bureau (MCHB)
www.mchb.hrsa.gov
MCHB is a bureau of the Health Resources and Services Administration,
U.S. Department of Health and Human Services. The MCHB Vision:
MCHB believes in a future America in which the right to grow
to one’s full potential is universally assured through
attention to the
comprehensive physical, psychological, and social needs of
the MCH population.
We strive for a society where children are wanted and born
with optimal
health, receive quality care, and are nurtured lovingly and
sensitively as they
mature into healthy, productive adults. The Bureau seeks
a Nation where there
is equal access for all to quality health care in a supportive,
culturally
competent, family and community setting.
Charged with primary responsibility for promoting and improving
the health of our
Nation’ s mothers and children, the Maternal and Child
Health Bureau (MCHB) draws
upon nearly a century of commitment and experience. Early
efforts are rooted in the
MCHB predecessor, the Children’s Bureau, established
in 1912. In 1935, Congress
enacted Title V of the Social Security Act, which authorized
the Maternal and Child
Health Services Programs providing a foundation and structure
for assuring the
health of mothers and children for more than 65 years. Today,
the Maternal and Child
Health Bureau, as part of the Health Resources and Services
Administration, U.S.
Department of Health and Human Services, administers Title
V.
State Title
V CSHCN Programs - Children with Special Health Care
Needs
Every state and the District of Columbia has a Title V Program
for Children with Special Health Care Needs (CSHCN) that is
funded, in part, through the Federal Title V Maternal and
Child Health Block Grant. These programs began in 1935, when
Congress passed the Social Security Act, a law designed to
bring some financial and health security into the lives of
America's most vulnerable citizens. The fifth article of
that act, known as Title V (five), provided funds to states
to
develop and operate public health care programs for certain
children with special health care needs as well as to establish
other programs to promote the health of low income mothers
and children.
Addressing Federal Goals:
- Healthy People 2010 Objective 16.23, to implement
service systems for children and youth with special health
care needs (CYSHCN)
- President’s New Freedom Initiative to reduce
barriers to community services and independent living
State Title V CSHCN Programs & Transition for YSHCN
THE ISSUE
The Federal/State Title V Program has a unique responsibility
for facilitating the development of community-based systems
of services for children and youth with special health care
needs.
THE BARRIERS
Limited financial resources for dedicated positions to staff
key issue positions are available through Title V to fund
the provision of care and to facilitate the development of
community-based systems of services for children and youth
with special health care needs.
State Title V CSHCN Programs have traditionally focused on
short-term goals and medical needs and have not focused on
long-term issues such as transfer to adult care systems, employment,
and independent living. This is equally true of the adult
health care system.
Although MCHB has a broad definition of children and youth
with special health care needs, states have the authority to
choose the types of services they will provide and define who
is eligible for those services. State Title V CSHCN Programs provide services to infants, children
and youth from birth to age 18 or 21 who have special health
care needs.
The scope and eligibility of State Title V CSHCN Programs and services
varies from state to state and may be limited by diagnosis, income,
or age. Some programs provide direct services and others focus on
assuring access to specialty services.
Directory of State Title V CSHCN Programs-Scope and Eligibility
Champions for Inclusive Communities provides
a quick reference for most states for sharing information with families, state and
community programs, legislators, and other partners about community-based
systems of services for children and youth with special health care needs
(CYSHCN).
ChampionsInC also provides contact
information and other useful resources within each state.
AMCHP-Association of Maternal and Child Health
www.amchp.org/
With support from the Maternal and Child Health Bureau, Health
Resources and Services Administration, AMCHP assists families
and state Title V CSHCN programs with policy and legislative
analysis, research on directions in the field, coordination
of national meetings and publications addressing related
issues.
JOHNS HOPKINS SCHOOL OF PUBLIC HEALTH
HEALTH SYSTEMS RESEARCH, INC.
Title V Roles in Coordinating Care for Children with Special
Health Care Needs, 7/00
 www.jhsph.edu/wchpc/projects/cshcn/final.pdf
Children with special health care needs and their families
require a wide range of medical, psychosocial, educational,
and support services (American Academy of Pediatrics, 1998;
National Coalition of Family Leadership, 1995). Assisting
families in coordinating these services is an important but
challenging goal for health care providers, agencies, and
managed care organizations in both the public and private
sectors. What is care coordination and what can it be expected
to achieve? How are care coordination services delivered?
How can states assure adequate reimbursement for care coordination
services? What are the key elements of successful programs?
Answers to these questions are needed urgently to help shape
the capacity of the nation’s rapidly evolving health
care system. Published 2000.
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