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  Systems and Services Youth Involvement Tools and Solutions Health Care Tell Us
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  Federal Initiatives
 
 
Federal Level: New Initiatives – New Synergy

For the first time, a generation of American youth with special health care needs have survived beyond their diagnosis/prognosis. But, because of poorly managed health problems, many cannot maintain placement in higher education, sustain employment, or live independently.

If they are not healthy—even with quality inclusive education and expanded opportunities for competitive employment—they cannot reach their potential in the classroom or on the job. Their performance is affected, their productivity reduced, and they may fail to master necessary skills. Knowing how to manage health issues—no matter the severity—increases their chances of a successful transition from school to work and a productive adulthood.

Recognition of these critical needs—young people’s understanding of their health needs, access to quality care, and involvement in health care decision making—for success in the classroom and on the job led to the creation of a new resource focused on the development of policies and strategies that promote these goals.

Disability Info – a one-stop interagency web portal
www.disabilityinfo.gov

On August 28, 2002, President George W. Bush issued an Executive Memorandum as part of his New Freedom Initiative which directed federal agencies to work together to build a one-stop interagency web portal for people with disabilities, their families, employers, service providers, and other community members. This website is a comprehensive plan that promotes the opportunity for each person with disabilities to learn and develop skills, engage in productive work, choose where to live, and participate in community life. Designed to have comprehensive disability-related government resources, tabs along the top of the home page connect to federal agencies, laws and information for Employment, Education, Housing, Transportation, Income Support, Technology, Community Life, and Civil Rights. Each topic includes information about the federal laws that apply to that topic, their application, and links to current projects and publications.

 

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The HRTW Center is headquartered at the Maine State Title V CSHN Program. Activities are coordinated through the Maine Support Network's Center for Self-Determination, Health and Policy. The Center is funded through a cooperative agreement (U39MC06899-01-00) from the Integrated Services Branch, Division of Services for Children with Special Health Care Needs (DSCSHN) in the Federal Maternal and Child Health Bureau (MCHB), Health Resources and Service Administration (HRSA), Department of Health and Human Services (DHHS).
Lynda Honberg, HRSA/MCHB Project Officer.