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  HHS Office on Disability
 
 
HHS- Office on Disability
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Health and Human Services - In the summer of 2002, HHS Secretary Tommy G. Thompson announced the creation of the HHS Office on Disability to oversee the coordination, development and implementation of programs and special initiatives within HHS that impact people with disabilities. Margaret J. Giannini, M.D., F.A.A.P., who had previously served as the Deputy Assistant Secretary for aging at the Administration on Aging (AoA), was appointed the director to the new HHS Office on Disability. The announcement builds on the work of President Bush's New Freedom Initiative, a comprehensive plan to tear down barriers facing people with disabilities, which prevent them from fully participating in community life. It is anticipated this new federal office will create a federal sustaining interagency council, a hybrid of the Department of Labor’s former Youth with Disabilities Task Force and the HRTW Interagency Workgroup, where health will be the lead and the focus.

In a 2002 interview Dr. Giannini articulated the problems that need urgent attention. “There are major gaps in transportation, healthcare, employment, education, and housing. But most importantly, I see a major gap in planning for life span transition. From birth to death, we don't really have a smooth transition for persons with disabilities. For instance, after their pediatric life cycle of 21 years, then what? The search for services starts all over again. And then from ages 21 to 35, it starts all over again. We see the same from 35 to 55 years and then between 55 to 75 years until we get into major aging. And then the disability may in many cases just worsen.” (See www.aamr.org/FYI/interview_giannini.shtml .)

 

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The HRTW Center is headquartered at the Maine State Title V CSHN Program. Activities are coordinated through the Maine Support Network's Center for Self-Determination, Health and Policy. The Center is funded through a cooperative agreement (U39MC06899-01-00) from the Integrated Services Branch, Division of Services for Children with Special Health Care Needs (DSCSHN) in the Federal Maternal and Child Health Bureau (MCHB), Health Resources and Service Administration (HRSA), Department of Health and Human Services (DHHS).
Elizabeth McGuire, HRSA/MCHB Project Officer.