JOHNS
HOPKINS SCHOOL OF PUBLIC HEALTH
Title V Roles in Coordinating Care for Children with Special Health
Care Needs, 7/00
http://www.jhsph.edu/centers/cshcn/final.pdf
Children with special health care needs and their families
require a wide range of medical, psychosocial, educational, and
support services (American Academy of Pediatrics, 1998; National
Coalition of Family Leadership, 1995). Assisting families in coordinating
these services is an important but challenging goal for health care
providers, agencies, and managed care organizations in both the
public and private sectors. What is care coordination and what can
it be expected to achieve? How are care coordination services delivered?
How can states assure adequate reimbursement for care coordination
services? What are the key elements of successful programs? Answers
to these questions are needed urgently to help shape the capacity
of the nation’s rapidly evolving health care system. Prepared
for: The Division of Children with Special Health Care Needs, Maternal
and Child Health Bureau, Health Resources and Services Administration,
Rockville, MD.
GEORGETOWN UNIVERSITY
The Consortium
gucchd.georgetown.edu/programs/consortium_for_children/
The consortium is a partnership of Georgetown University Child Development
Center, Family Voices, Heller School at Brandeis University, and
the Institute for Child Health Policy of the University of Florida
(NIDRR grant). Consortium research projects seek to improve care
systems and rehabilitation outcomes for children and youth with
disabilities.
ICHP - HRTW/Transition
Activities of State Title V CSHCN Programs: Results of a National
Survey 2000 on HRTW Activities in state Title V CSHCN Programs.
cshcnleaders.ichp.edu/ILSCPTransitionNationalSurvey/TransitionSurvey2000.pdf
MCH Policy Research Center
Program Cuts Affecting Half of All State Title V Programs
For CSHCN (3/02)
www.mchpolicy.org
Survey findings from the MCH Policy Research Center reveals
that just over half of the state Title V Programs for CSHCN
have made or plan to make program cutbacks in fiscal year
2002. This is due to a large part to budget shortfalls. Unlike
state Medicaid programs and State Children's Health Insurance
Programs (SCHIP) which rely heavily on federal matching funds,
Title V CSHCN Programs are much more depend on state, and
also local, revenues.
New England SERVE
www.neserve.org/aboutus/index.html
Established in 1983, New England SERVE is a health policy,
research and planning organization working to promote quality
systems of care for children with special health care needs
and their families. For over fifteen years, New England SERVE
has been building connections between state health departments,
health care organizations, community-based providers, families
and other health policy-makers in New England. We have focused
our efforts on enhancing the quality of health services by
bringing families and providers into health policy conversations.
RAND - Community-Based Child And Family Service Systems Research
Methodology
www.rand.org/publications/RGSD/RGSD161/RGSD161.pdf
What Works? Integrating Multiple Data Sources and Policy Research
Methods in Assessing Need and Evaluating Outcomes in Community-Based
Child and Family Service Systems examines the roles that policy
analysts and policy research play in improving the effectiveness
of systems of care: (1) using community-risk scales to allocate
resources for community-based child and family services, (2)
matching needs and services using an outcomes-based needs
assessment tool for community-based service systems; (3) the
effects of community-level needs on foster care outcomes;
and (4) integrating qualitative and quantitative methods in
evaluating foster care services.
URBAN INSTITUTE -Transition Options for Youth with Disabilities
www.urban.org/
This paper characterizes the programs and the complex set
of programs that may affect the transition from school to
work for a youth with a disability. Given the emphasis on
accountability for outcomes in the recent IDEA legislation,
it will be increasingly important for both researchers and
policy makers to understand the interaction of school and
non-school programs on the economic decisions of youth with
disabilities. October 01, 2001.
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