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(2008) Journal of Behavioral Health Services and Research, October, Volume 35, 4 (2008) Pediatric Blood and Cancer, May, Volume 50 (5 Suppl) (2007) International Journal of Adolescent Medicine and Health, July-September, Volume 19 , 3 (2007) Medical Journal of Australia, October 1, Volume 187 (7 Suppl) (2007) New Directions in Youth Development, Spring, Volume 113
Blum R, White PH & Gallay L
(2005) Moving into adulthood for youth with disabilities and serious health concerns., Network on Transitions to Adulthood Policy Brief, 26. Philadelphia, PA: University of Pennsylvania, MacArthur Research Network on Transitions to Adulthood and Public Policy. http://www.transad.pop.upenn.edu/downloads/blum%20disabilities%20final.pdf Abbott S, Cairns L & Davies H (2008) Empowering young people with long-term illness. Paediatr Nursing, 20(4), 35-7 Abramson, N (1996) Quality of life: who can make the judgment? American Journal of Medicine, 100(3), 365-366 ACRM Committee on Social, Ethical, and Environmental Aspects of Rehabilitation (1993) Addressing the post-rehabilitation health care needs of persons with disabilities. Archives of Physical Medicine and Rehabilitation , (74:S), 8-14 Admi, H & Shaham, B (2007) Living with epilepsy: Ordinary people coping with extraordinary situations. Qual Health Res., 17(9), 1178-87 Ahrens KR, DuBois DL, Richardson LP, Fan MY & Lozano P (2008) Youth in foster care with adult mentors during adolescence have improved adult outcomes, Pediatrics, 21(2), e246-52 Ailey, SH, Marks, BA, Crisp, C & Hahn, JE (2003) Promoting sexuality across the life span for individuals with intellectual and developmental disabilities. Nursing Clinics of North America, 33 (2), 229-52 Akeson N, Worth A & Sheikh A (2007) The psychosocial impact of anaphylaxis on young people and their parents, Clin Exp Allergy, 37(8), 1213-20 Akinbami LJ, Gandhi H & Cheng TL (2003) Availability of adolescent health services and confidentiality in primary care practices, Pediatrics, 111(2), 394-401 Al Mamun A, Cramb S, McDermott BM, O'Callaghan M, Najman JM & Williams GM (2007) perceived weight associated with depression in young adulthood: A longitudinal study, Obesity (Silver Spring), 15(12), 3097-105 Albrecht, GL & Devlieger, PJ (1999) The disability paradox: High quality of life against all odds. Social Science & Medicine, 48(8), 977-988 Albritton KH & Eden T (2008) Access to care. Pediatr Blood Cancer, 1094-8 Alderman EM, Rieder J & Cohen MI (2003) The history of adolescent medicine. Pediatric Research, 54, (1), 137-147 Alexander B & Schrauben S (2006) Outside the margins: Youth who are different and their special health care needs. Primary Care, 33(2), 285-303 Alexander J, Callahan B, King A, King J, Hooper S, & Bartel S (2001) North Carolina's TBI Project ACCESS. Assuring coordinated care, education, and support for survivors of pediatric brain injury. N C Med J, 62 , 359-63 Allen D & Gregory J (2009) The transition from children's to adult diabetes services: Understanding the 'problem'., Diabet Med, 26(2), 162-6 Allen, DB (1999) Issues in the transition from childhood to adult growth hormone therapy. Pediatrics, 104, 1004-1009 Alpay H (2009) Transition of the adolescent patient to the adult clinic. , Perit Dial Int, 29, Feb, Suppl 2, S180-2 American Academy of Family Physicians (AAFP), American Academy of Pediatrics (AAP), American College of Physicians (ACP), American Osteopathic Association (AOA) (2007) Joint Principles of the Patient-Centered Medical Home. Available at http://www.patientcenteredprimarycare.org/JOINT_PRINCIPLES.pdf American Academy of Pediatrics (2004) The medical home., Pediatrics, 113, Supplement (5), 1471-1548 American Academy of Pediatrics (1996) Transition of care provided for adolescents with special health care needs. American Academy of Pediatrics Committee on Children with Disabilities and Committee on Adolescence. Pediatrics, 98 (6, Pt 1), 1203-1206 American Academy of Pediatrics Committee on Child Health Financing (1995) Guiding Principles for Managed Care Arrangements for the Health Care of Infants, Children, Adolescents, and Young Adults. Pediatrics, 95(4), 613-615 American Academy of Pediatrics Committee on Children with Disabilities (2002) The role of the pediatrician in transitioning children and adolescents with developmental disabilities and chronic illnesses from school to work or college. Pediatrics, 106, 854-856 American Academy of Pediatrics Committee on Children with Disabilities (1999 ) Care Coordination: Integrating Health and Related Systems of Care for Children With Special Health Care Needs., Pediatrics, 104, 978-981 American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians-American Society of Internal Medicine (2002) A consensus statement on health care transitions for young adults with special health care needs. , Pediatrics, 110, 1304-1306, available at http://pediatrics.aappublications.org/cgi/reprint/110/6/S1/1304.pdf American Medical Association, Council on Scientific Affairs (1993) The health care of children and youths with disabilities. Archives of Family Medicine, 2, 326-329 Anderson, BJ & Wolpert, HA (2004) A developmental perspective on the challenges of diabetes education and care during the young adult period. Patient Education and Counseling, 53, 347-52 Anderson, CJ, Johnson, KA, Klaas, SJ, & Vogel, LC (1998) Pediatric spinal cord injury: Transition to adulthood. Journal of Vocational Rehabilitation, 10, 103-113 Anderson, CJ, Vogel, LC, Willis, KM & Betz, RR (2006) Stability of transition to adulthood among individuals with pediatric-onset spinal cord injuries., J Spinal Cord Med., 29 (1), 46-56 Anderson, DL, Flume, PA, Hardy, KK & Gray, S (2002) Transition programs in cystic fibrosis centers: Perceptions of patients. Pediatric Pulmonology, 33, 327-331 Anderson, EM, Clark, L, & Spain, B (1982) Disability in Adolescence. New York: Methuen and Company Anderson, G & Knickman, JR (2002) Changing the chronic care system to meet people's needs. Health Affairs, 20 (6), 146-60 Andersson, C & Mattsson, E (2001) Adults with cerebral palsy: A survey describing problems, needs, and resources, with special emphasis on locomotion. Developmental Medicine and Child Neurology, 43, 76-82 Andren E (2000) Dependence and perceived difficulty in activities of daily living in adults with cerebral palsy and spina bifida., Disabil Rehabil, 22, 299-307 Anie, KA & Telfair, J (2005) Multi-site study of transition in adolescents with sickle cell disease in the United Kingdom and the United States. International Journal of Adolescent Medicine and Health, 17 (2), 169-178 Annunziato RA, Emre S, Shneider B, Barton C, Dugan CA & Shemesh E (2007) Adherence and medical outcomes in pediatric liver transplant recipients who transition to adult services. Pediatr Transplant., 11(6), 608-14 Annunziato RA, Emre S, Shneider BL, Dugan CA, Aytaman Y, McKay MM & Shemesh E (2008) Transitioning health care responsibility from caregivers to patient: A pilot study aiming to facilitate medication adherence during this process., Pediatr Transplant, 12(3), 309-15 Ansell, BM & Chamberlain, MA (1998) Children with chronic arthritis: the management of transition to adulthood., Bailliere's Clinical Rheumatology, 12(2), 363-374 Anthony SJ, Martin K, Drabble A, Seifert-Hansen M, Dipchand AI & Kaufman M (2009) Perceptions of transitional care needs and experiences in pediatric heart transplant recipients., Am J Transplant, 9(3), 614-9; erratum in: Am J Transplant, 9(7), 1698 Antle BJ, Montgomery G & Stapleford C (2009) The many layers of social support: Capturing the voices of young people with spina bifida and their parents., Health Soc Work. 34(2), 97-106 Appleton, RE (2001) Transition from paediatric clinic to the adult service. J R Soc Med, 94, 554 Appleton, RE, Chadwick. D & Sweeny, A (1997) Managing the teenager with epilepsy: Paediatric to adult care. Seizure, 6, 27-30 Arcelus J, Bouman WP & Morgan JF (2008) Treating young people with eating disorders: Transition from child mental health to specialist adult eating disorder services, Eur Eat Disord Rev., 16(1), 30-6 Armstrong, KH, Dedrick, RF & Greenbaum, PE (2003) Factors associated with community adjustment of young adults with serious emotional disturbance: A longitudinal analysis. Journal of Emotional and Behavioral Disorders, 11, 66-76 Arnett JJ (2003) Conceptions of the transition to adulthood among emerging adults in American ethnic groups, (100), 63-75 Arnett, JJ (2004) Emerging Adulthood: The Winding Road from Late Teens through the Twenties. Oxford University Press Arnett, JJ (2000) Emerging adulthood: A theory of development from the late teens through the twenties. American Psychologist, 55(5), 469-480 Aung, TS, Boughey, A, & Ward, AB (1994) A study of the North Staffordshire young adult service for the physically handicapped school leaver and young adult, Clinical Rehabilitation, 8, 247- 252 Avenevoli S & Steinberg L (2001) The continuity of depression across the adolescent transition. Adv Child Dev Behav., 28, 139-73 Ayala GX, Miller D, Zagami E, Riddle C, Willis S & King D (2006) Asthma in middle schools: What students have to say about their asthma. Journal of School Health, 76(6), 208-14 Bailey, S, O'Connell, B & Pearce, J (2003) The transition from paediatric to adult health care services for young adults with a disability: an ethical perspective. Aust Health Rev., 26(1), 64-69. Baker CP, Rosenberg M, Mossberg KA, Holzer C 3rd, Blakeney P, Robert R, Thomas C & Meyer W 3rd (2008) Relationships between the Quality of Life Questionnaire (QLQ) and the SF-36 among young adults burned as children, Burns. 34 (8), 1163-1168 Baker CP, Russell WJ, Meyer W 3rd & Blakeney P (2007) Physical and psychologic rehabilitation outcomes for young adults burned as children, Arch Phys Med Rehabil., 88(12 Suppl 2), S57-64 Baker GA, Hargis E, Hsih MM, Mounfield H, Arzimanoglou A, Glauser T, Pellock J, Lund S; International Bureau for Epilepsy (2008) Perceived impact of epilepsy in teenagers and young adults: An international survey, Epilepsy Behav., 12(3), 395-401 Baker KL & Coe LM (1993) Growing up with a chronic condition: Transition to young adulthood for the individual with cystic fibrosis. Holistic Nursing Practice, 8, 8-15. Baldassano R, Ferry G, Griffiths A, Mack D, Markowitz J, & Winter HJ (2002) Transition of the patient with inflammatory bowel disease from pediatric to adult care: Recommendations of the North American Society for Pediatric Gastroenterology, Hepatology and Nutrition. Pediatr Gastroenterol Nutr, 34, 245-8 Balon YE, Then KL, Rankin JA & Fung T (2008) Looking beyond the biophysical realm to optimize health: Results of a survey of psychological well-being in adults with congenital cardiac disease, Cardiol Young, 18(5), 494-501 Barbero, G. (1982) Leaving the pediatrician for the internist. Annals of Internal Medicine, 96(1), 673-674 Barf HA, Post MW, Verhoef M, Jennekens-Schinkel A, Gooskens RH & Prevo AJ (2007) Life satisfaction of young adults with spina bifida. Dev Med Child Neurol., 49(6), 458-63 Barker G, Olukoya A & Aggleton P (2005) Young people, social support and help-seeking. Int J Adolesc Med Health, 17(4), 315-35 Barnhart, RC (2001) Aging adult children with developmental disabilities and their families: Challenges for occupational therapists and physical therapists. Physical and Occupational Therapy in Pediatrics, 21(4), 69-81 Bartman B, Moy E, D'Angelo L (1997) Access to ambulatory care for adolescents: The role of a usual source of care. J Health Care Poor Underserved, 8, 214-226 Baskin ML, Collins MH, Brown F, Griffith JR, Samuels D, Moody A, Thompson MP, Eckman J, Kaslow NJ (1998) Psychosocial considerations in sickle cell disease (SCD): The transition from adolescence to young adulthood. Journal of Clinical Psychology in Medical Settings, 5 (3), 315-341 Bates K, Bartoshesky L & Friedland A (2003) As the child with chronic disease grows up: Transitioning adolescents with special health care needs to adult-centered health care. Delaware Medical Journal, 75 (6), 217-220 Bauermeister JA, Zimmerman MA, Barnett TE & Caldwell CH (2007) Working in high school and adaptation in the transition to young adulthood among African American youth. Journal of Youth and Adolescence, 36 (7), 877-890 Bax, MC, Smyth, DP, & Thomas, A (1988) Health care of physically handicapped young adults. British Medical Journal, 296, 1153-5 Bazyk, S (2005) Exploring the development of meaningful work for children and youth in Western contexts. Work, 24(1), 11-20 Beale IL, Kato PM, Marin-Bowling VM, Guthrie N & Cole SW (2007) Improvement in cancer-related knowledge following use of a psychoeducational video game for adolescents and young adults with cancer, of Adolescent Health, 41(3), 263-70 Beck, KS & Newman SS (1999) Summary of data on young people with disabilities in the United States. Conwal Incorporated and distributed at the President’s Task Force on Employment of People with Disabilities meeting in Washington, DC, July Beck, MJ, Evans, BJ, Quarry-Horn, JL, & Kerrigan, JR (2002) Type 2 Diabetes Mellitus: Issues for the medical care of pediatric and adult patients. Southern Medical Journal, 95, 992-1000 Beers, NS, Kemeny, A, Sherritt, L, & Palfrey, JS (2003) Variations in state-level definitions: Children with special health care needs. Public Health Reports, 118, 434-447 Bell LE, Bartosh SM, Davis CL, Dobbels F, Al-Uzri A, Lotstein D, Reiss J & Dhamidharka VR (2008) Adolescent transition to adult care in solid organ transplantation: A consensus conference report, Am J Transplant., 8(11), 2230-42 Bell S & Lee C (2008) Transitions in emerging adulthood and stress among young Australian women., Int J Behav Med, 15(4), 280-8 Bell, L (2007) Adolescent dialysis patient transition to adult care: A cross-sectional survey. Pediatr Nephrol., 22(5), 720-6 Bellin M, Sawin KJ, Roux G, Buran CF, Brei TJ & Kain J (2007
) The experience of being adolescent women with a disability, Part 1: Self esteem and family relationships., Rehabilitation Nursing, 32 (1), 57-67 Belling, L, Harrop, M, Kocik, S, Obstein, L, Standish, D, Vlasich, W., & Zappa, S (2003) Transition guidelines for people with bleeding orders. HEMAware, 8 (4), 88-95 Bennett, DL, Towns, SJ & Steinbeck, KS (2005) Smoothing the transition to adult care. The most important need is for a change of attitude and approach. Med J Aust. , 182(8), 373-4 Bent, N, Tennant, A, Swift, T, Posnett, J, Scuffham, P & Chamberlain, MA (2002) Team approach vs. ad hoc health services for young people with physical disabilities: A retrospective cohort study. Lancet, 360, 1280-86 Beresford B & Sloper P (2003) Chronically ill adolescents' experiences of communicating with doctors: A qualitative study. J Adolesc Health, 33, 172-179 Beresford, B (2004) On the road to nowhere? Young disabled people and transition. Child Care Health Development, 30(6), 581-7 Berg SK & Hertz PG (2007) Outpatient nursing clinic for congenital heart disease patients: Copenhagen Transition Program, J Cardiovasc Nursing, 2(6), 488-92 Berge, J M, Patterson, JM, Goetz, D & Milla, C (2007) Gender differences in young adults' perceptions of living with cystic fibrosis during the transition to adulthood: A qualitative investigation, Families, Systems, & Health, 25(2), 190-203 Berkowitz S
(2009) Transitioning adolescents to adult care: Putting theory into practice., Minn Med, 92(3), 42-4 Bernheimer LP, Keogh BK & Guthrie D (2006) Young children with developmental delays as young adults: Predicting developmental and personal-social outcomes. Am J Ment Retard., 111(4), 263-72 Berry, D (2004) The relationship between depression and emerging adulthood: theory generation. ANS Advances in Nursing Science, 27(1), 53-69 Bethell CD, Read D, Blumberg SJ & Newacheck PW (2008) What is the prevalence of children with special health care needs? Toward an understanding of variations in findings and methods across three national surveys, Maternal Child Health Journal, 12 (1), 1-14 Bethell CD, Read D, Blumberg SJ & Newacheck PW (2007) What is the prevalence of children with special health care needs? Toward an understanding of variations in findings and methods across three national surveys. Maternal Child Health Journal, June 14 [e-pub ahead of print] Betz C, Cowell J , Craft-Rosenberg M, Krajicek M & Lobo M (2007) Health care quality and outcome guidelines for nursing of children and families: Implications for pediatric nurse practitioner practice, research, and policy, Journal of Pediatric Health Care, 21 (1), 64 - 66 Betz CL (2008) Health care transitions of youth with special health care needs: The never ending journey., Commun Nurs Res, 41 (Spring), 13-29 Betz CL & Redcay G (2003) Creating Healthy Futures: An innovative nurse-managed transition clinic for adolescents and young adults with special health care needs. Pediatric Nursing, 29(1), 25-30 Betz CL & Redcay G (2002) Lessons learned from providing transition services to adolescents with special health care needs. Issues Compr Pediatr Nurs, 25 (2), 129-49 Betz CL, Baer MT, Poulsen M, Vahanvaty U, Bare M, Haddad Y & Nwachuken G (2004) Secondary analysis of primary and preventive services accessed and perceived service barriers by children with developmental disabilities and their families. Issues in Comprehensive Pediatric Nursing, 27 (2), 83-106 Betz, CL (2007) Facilitating the transition of adolescents with developmental disabilities: Nursing practice issues and care. J Pediatric Nursing, 22(2), 103-15 Betz, CL (2006) Examining the status of special education students: Implications for pediatric nurses. J Pediatric Nursing, 21(1), 1-3 Betz, CL (2006) Self-management and adherence of children and youth with special health care needs: Implications for pediatric nursing practice. J Pediatric Nursing, 21(4), 253-5 Betz, CL (2004) Transition of adolescents with special health care needs: Review and analysis of the literature. Issues in Comprehensive Pediatric Nursing, 27, 179-241 Betz, CL (2004) Adolescents in transition of adult care: Why the concern?
Nursing Clinics of North America, 39(4, Dec), 681-713
Betz, CL (2003) Nurse's role in promoting health transitions for adolescents and young adults with developmental disabilities. Nursing Clinics of North America, 38(2), 271-89 Betz, CL (2001) Use of 504 plans for children and youth with disabilities: Nursing application. Pediatric Nursing, 27 (4), 347-352 Betz, CL (2000) California Healthy and Ready to Work: Transition health care guide: Developmental guidelines for teaching health care. Issues in Comprehensive Pediatric Nursing, 23, 203-244 Betz, CL (1999) Adolescents with chronic conditions: Linkages to adult service systems. Pediatric Nursing, 25 (5), 473-476 Betz, CL (1999) Collaborative partnerships: Building new programs and services for children. Journal of Pediatric Nursing, 14 (5), 279-280 Betz, CL (1998) Adolescent transitions: A nursing concern, Pediatric Nursing, 24 (1), 23-28 Betz, CL (1998) Facilitating the transition of adolescents with chronic conditions from pediatric to adult health care and community settings. Issues in Comprehensive Pediatric Nursing, 21(2), 97-115 Betz, CL (1998) 504 Referrals: An underutilized resource for students with special health care needs Journal of Pediatric Nursing, editorial, 13 (6) Betz, CL & Nehring, W. Eds. (2007) Promoting Health Care Transitions for Adolescents with Special Health Care Needs and Disabilities., Baltimore, MC: Paul H. Brookes Betz, CL & Redcay, G (2005) Dimensions of the transition service coordinator role. Journal of Specialty Pediatric Nursing, , 10 (2, Apr-Jun), 49-59 Betz, CL & Redcay, G (2005) An exploratory study of future plans and extracurricular activities of transition age-youth and young adults., Issues Comprehensive Pediatric Nursing, 28 (1), 33-61 Betz, CL, Redcay, G & Tan, S (2003) Self-reported health care self-care needs of transition-aged youth: A pilot study. Issues in comprehensive Pediatric Nursing, 26, 159-181 Bhakta BB, Rooney CM, Sat W, Roussonnis SH & Chamberlain MA (2000) Transition from paediatric to adult care. Arch. Dis. Child, 82, 266 Biddle L, Donovan J, Sharp D & Gunnell D (2007) Explaining non-help-seeking amongst young adults with mental distress: A dynamic interpretive model of illness behaviour, Sociol Health Illn., 29(7), 983-1002 Binks JA, Barden WS, Burke TA & Young, NL (2007) What do we really know about the transition to adult-centered health care? A focus on cerebral palsy and spina bifida. Arch Phys Med Rehabilitation, 88(8), 1064-73 Bjarnason, DS (2002) New voices in Iceland. Parents and adult children: juggling supports and choices in time and space., Disability & Society, 17(3), 307-326 Bjornsen, KD (2004) Health care transition in congenital heart disease: the providers' view point. Nursing Clinics of North America, 39(4), 715-26 Blacher, J. (2001) Transition to adulthood: Mental retardation, families, and culture. American Journal on Mental Retardation, 106, 173-188 Blackorby, J & Wagner, M (1996) Longitudinal postschool outcomes of youth with disabilities: Findings from the National Longitudinal Transition Study. Exceptional Children, 62, 399-413 Blaisdell CJ (2002) The adolescent with asthma: strategies for improved outcomes. Md Med, 3(3),42-4 Blake KD, Salem-Hartshorne N, Daoud MA & Gradstein J (2005) Adolescent and adult issues in CHARGE syndrome. Clin Pediatr, 44(2), 151-9 Blalock, G (1996) Community transition teams as the foundation for transition services for youth with disabilities. Journal of Learning Disabilities, 29, 148-159 Bleyer, A (2007) Adolescent and young adult (AYA) oncology: The first A. , Pediatr Hematol Oncol., 24(5), 325-36 Bleyer, A (2007) Young adult oncology: The patients and their survival challenges. , CA Cancer J Clin., 57(4), 242-55
Blomquist, KB (in press 2006) Health, Education, Work and Independence of Young Adults with Disabilities. Orthopaedic Nursing Blomquist, KB (2007) Health and independence of young adults with disabilities: Two years later. Orthopaedic Nursing, 26(5), 296-309 Blomquist, KB (2006) Healthy and Ready to Work – Kentucky: Incorporating transition into a state program for children with special health care needs., Pediatric Nursing, 32 (6), 515-528 Blomquist, KB, Brown, G, Peersen, A, & Presler, EP (1998) Transitioning to independence: Challenges for young people with disabilities and their caregivers. Orthopaedic Nursing, 17 (3), 27-35 Blue-Banning, M, Turnbull, AP, & Pereira, L (2002) Hispanic youth/young adults with disabilities: Parents’ visions for the future. Research and Practice for Persons with Severe Disabilities, 27(3), 204-219 Blum RW (2002) Improving transition for adolescents with special health care needs from pediatric to adult-centered health care. Pediatrics., 110, 1301-1303 Blum RW (2002) Improving transition for adolescents with special health care needs from pediatric to adult-centered health care. Pediatrics, 110, 1301-1303 Blum, R & Smith, M (1988) Training of health professionals in adolescent health care: Study group report. J Adolesc Health Care, 9, 46-50S Blum, RW (1995) Transition to adult care: Setting the stage. Journal of Adolescent Health, 17, 3-5 Blum, RW (1995) Summary of conference recommendation. Moving on: transition from pediatric to adult health care. Adolescent Health , 17, 6-9. Blum, RW (1994) Executive summary and recommendations. Journal of School Health, 64 (6), 221-222 Blum, RW (1991) Overview of transition for youth with disabilities. Paediatrician, 18, 101-104 Blum, RW (1988) Introduction to health futures of youth. J Adolesc Health Care, 9, 1-2S Blum, RW & Okinow, NA (1993) Teenagers at risk - A national perspective of state level services for adolescents with chronic illness of disability: Executive summary. Connections: The Newsletter of the National Center for Youth with Disabilities, 3 (3 SUPPL.), 1-8 July Blum, RW, Hodgman, CH, Jorissen, TW, Okinow, NA, Orr, D, & Slap, GB (1993) Transition from child-centered to adult-centered health-care systems for adolescents with chronic conditions: A position paper of the Society for Adolescent Medicine. Journal of Adolescent Health, 14, 570- 576 Blum, RW, Kelly, A, & Ireland, M (2001) Health-risk behaviors and protective factors among adolescents with mobility impairments and learning and emotional disabilities. Journal of Adolescent Health, 28, 481-490 Blum, RW, Resnick, MD, Nelson, R, et al. (1991) Family and peer issues among adolescents with spina bifida and cerebral palsy. Pediatrics, 88, 280-285 Bodenheimer T, Lorig K, Holman H & Grumbach K (2003) Patient self-management of chronic disease in primary care., JAMA, 288(19), 2469-2475 Bolte, S & Zebrack, B (2008) Sexual issues in special populations: Adolescents and young adults, Semin Oncol Nursing, 24(2), 115-9
Bolton-Maggs, PHB (2007) Transition of care from paediatric to adult services in haematology. Archives of Disease in Childhood, 92 (9), 797-801 Boslaugh SE & Andresen EM (2006) Correlates of physical activity for adults with disability. Prev Chronic Dis. 3(3), A78. Epub 2006 Jun 15 Bottos, M., Feliciangeli, A., Sciuto, L., Gericke, C., & Vianello, A. (2001) Functional status of adults with cerebral palsy and implications for treatment for children. Developmental Medicine and Child Neurology, 43, 516-528 Bowen, M (2007) Complex palliative care and transition: A case review. , Paediatr Nursing, 19(9), 42-5 Bowes, G, Sinnema, G, Suris, J, & Buhlmann U (1995) Transition health services for youth with disabilities: A global perspective. Conference Proceedings. Journal of Adolescent Health, 17 (1): 23-31 Boyd, HH & Swedeen, B (2007) A person-centered, asset-based community development framework for youth with special health care needs/disabilities in transition to adulthood. Journal of Youth Development, 2 (1).
http://www.nae4ha.org/directory/jyd/jyd_article.aspx?id=910b6771-4848-45a9-a7f1-6b414c1d1443 Boydell KM, Stasiulis E, Greenberg M, Greenberg C & Spiegler B (2008) I'll show them: The social construction of (in)competence in survivors of childhood brain tumors., Pediatr Oncol Nursing, 25(3), 164-74
Boyle MP, Farukhi Z, & Nosky ML (2001) Strategies for improving transition to adult cystic fibrosis care, based on patient and parent views. Pediatric Pulmonol, 32 (Dec 6), 428-36 Braj, B, Picone, G, Children, HF, Cross, N & Pearlman, L (1999) The lived experience of adolescents who transfer from a pediatric to an adult hemodialysis centre., CANNT J, 9 (4), 41-6 Bray, SR & Kwan, MY (2006) Physical activity is associated with better health and psychological well-being during transition to university life., J Am Coll Health, 55(2), 77-82 Britto MT, DeVellis RF, Hornung RW, DeFries GH, Atherton HD & Slap GB (2004) Health care preferences and priorities of adolescents with chronic illnesses. Pediatrics, 114, 1272-80 Britto MT, Garrett JM, Dugliss MAJ, Johnson CA, Majure JM & Leigh MW (1999) Preventive services received by adolescents with cystic fibrosis and sickle cell disease. Archives of Pediatric and Adolescent Medicine, 153, 27-32 Britto, M, Garrett, J & Dugliss, M (1998) Risky behavior in teens with cystic fibrosis or sickle cell disease: A multi-center study. Pediatrics, 101, 250-256 Brodin, J & Fasth, A (2001) Habilitation, support and services for young people with motor disabilities: A Swedish perspective. International Journal of Rehabilitation Research, 24(4), 309-316 Brollier, C, Sheperd, J, & Markley, KF (1994) Transition from school to community living. American Journal of Occupational Therapy, 48, 346-353 Bronheim, S, Fiel, S, Schidlow, D, Magrab, P, Boczar, K & Dillon, C (1990) Crossings: A manual for Transition of Chronically Ill Youth to Adult Health Care. Washington, DC: Georgetown University Child Development Center Bronhiem, S, Fiel, S, Schidlow, D, Magrab, P, Boczar, K, & Dillion, C (1990) Crossings: A Manual for Transition Of Chronically Ill Youth to Adult Health Care. Pennsylvania, Department of Health Brookins, GK (1993) Culture, ethnicity, and bicultural competence: Implications for children with chronic illness and disability. Pediatrics, 91 (5), 1056-1062 Brooks F, Bunn F & Morgan J (2009) Transition for adolescents with long-term conditions: Event to process., Br J Community Nurs, 14(7), 301-4 Brotherson MJ, Houghton J, Turnbull AP, et al (1988) Transition into Adulthood: Parental Planning for Sons and Daughters with Disabilities. Education and Training of the Mentally Retarded, 23(3), 65-74 Brotherson, M, Berdine, W, & Sartini, V (1993) Transition to adult services: Support for ongoing parent participation. Remedial and Special Education., 14,(4), 44-51 Brotherson, MJ, Houghton, J, Turnbull, AP, Bronicki, GJ, Roeder-Gordon, C, Summers, J A, et al. (1988) Transition into adulthood: Parental planning for sons and daughters with disabilities. Education and Training in Mental Retardation, 23(3), 165-174 Brown DE &Thakur MB (2006) Workforce development for older youth. New Dir Youth Dev., 111 (Fall), 91-104, 10-1 Brown, BV (2008 ) A federal monitoring system for early adult health., Journal of Adolescent Health, 3(3), 277-284 Brown, BV, Moore, KA & Bzostek, S (2004) A statistical portrait of well-being in early adulthood. Cross Currents, Issue 2, August 2004, Child Trends Publication # 2004-18. www.childtrendsdatabank.org Brumfield, K &Lansbury, G (2004) Experiences of adolescents with cystic fibrosis during their transition from paediatric to adult health care: A qualitative study of young Australian adults. Disabil Rehabil, 26(4), 223-34 Bruyere, SM (1993) Participating action research: Overview and implications for family members of person with disabilities. Journal of Vocational Rehabilitation., 3 (2), 62-68 Bryan T, Stiles N, Burstein K, Ergul C & Chao, P-C (2007) "Am I supposed to understand this stuff?" Youth with special health care needs readiness for transition. Education and Training in Developmental Disabilities, 42, 330-338 Bryant R & Walsh T (2009) Transition of the chronically ill youth with hemoglobinopathy to adult health care: An integrative review of the literature., J Pediatr Health Care, 23(1), 37-48 Bryden K, Peveler R, Stein A, Neil A, Mayou R & Dunger, D (2001) Clinical and psychological course of diabetes from adolescence to young adulthood: A longitudinal cohort study. Diabetes Care, 24, 1536-1540 Bryon, M & Madge, S (2001) Transition from paediatric to adult care: psychological principles. Journal of the Royal Medical Society, 94 (Supplement 40), 5-7 Buck D, Smith M, Appleton R, Baker GA & Jacoby A (2007) The development and validation of the Epilepsy and Learning Disabilities Quality of Life (ELDQOL) scale. Epilepsy Behav, 10(1):38-43, Epub 2006 Nov 28 Bullis, M, Morgan, T, Benz, M, Todis, B & Johnson, MD (2002) Description and evaluation of the ARIES Project: Achieving rehabilitation, individualized education, and employment success for adolescents with emotional disturbance. Career Development for Exceptional Individuals, 25, 41-58 Buran CF, Sawin KJ, Brei TJ & Fastenau PS (2004) Adolescents with myelomeningocele: Activities, beliefs, expectations, and perceptions. Developmental Medicine & Child Neurology, 46(4), 244-252 Buran, CF, McDaniel, AM & Brei, TJ (2002) Needs assessment in a spina bifida program: Acomparison of the perceptions by adolescents with spina bifida and their parents. Clinical Nurse Specialist, 16, 256-262 Buran, CF, Sawin, KJ, Brei, TJ & Fastenau, PS (2004) Adolescents with myelomeningocele: Activities, beliefs, expectations, and perceptions. Dev Med Child Neurol, 46, 244-52 Burdo-Hartman WA & Patel DR (2008) Medical home and transition planning for children and youth with special health care needs., Pediatr Clin North Am, 55(6), 1287-97, vii-viii Burke ME, Albritton K & Marina N Cancer, (2007) Challenges in the recruitment of adolescents and young adults to cancer clinical trials. , 110(11), 2385-93 Burke R, Spoerri M, Price A, Cardosi AM & (2008) Survey of primary care pediatricians on the transition and transfer of adolescents to adult health care. , Flanagan P Clinical Pediatrics (Phila), 47(4), 347-54 Burlew K, Telfair J, Colangelo L, & Wright EC. (2000) Factors that influence adolescent adaptation to sickle cell disease. J Pediatr Psychol, 25, 287-299 Burns, JJ, Sadof, M & Kamat D (2006) The adolescent with a chronic illness., Pediatr Ann, 35(3), 206-10, 214-16 Burns, JJ, Sadof, M & Kamat D (2006) The adolescent with a chronic illness., Pediatr Ann, 35(3), 206-10, 214-16 Burstein, K, Bryan, T & Chao, P (2005) Promoting self-determination skills among youth with special health needs using participatory action research. Journal of Developmental and Physical Disabilities, 17 (2), 185-201. Burstein, K, Bryan, T, Chao, PC, Berger, K & Hirsch, D (in press, 2005-6) Communication patterns of primary care pediatricians, parents, and children with and without special health care needs. Journal of Developmental and Physical Disabilities Burstein, K, Bryan, T, Chao, PC, Berger, K & Hirsch, D (2005) Communication patterns of primary care pediatricians, parents, and children with and without special health care needs., Journal of Developmental and Physical Disabilities, 17 (3), 249-262 Busse FP, Hiermann P, Galler A, Stumvoll M, Wiessner T, Kiess W, Kapellen TM (2007) Evaluation of patients' opinion and metabolic control after transfer of young adults with type 1 diabetes from a pediatric diabetes clinic to adult care. Horm Res., 67(3), 132-8, Epub 2006 Oct 25
Yearly update December 2009
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