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Child Care Health Development, 30(6), 581-7 Bernheimer LP, Keogh BK & Guthrie D (2006) Young children with developmental delays as young adults: Predicting developmental and personal-social outcomes. Am J Ment Retard., 111(4), 263-72 Berry, D (2004) The relationship between depression and emerging adulthood: theory generation. ANS Advances in Nursing Science, 27(1), 53-69 Bethell CD, Read D, Blumberg SJ & Newacheck PW (2007) What is the prevalence of children with special health care needs? Toward an understanding of variations in findings and methods across three national surveys. Maternal Child Health Journal, June 14 [e-pub ahead of print] Betz CL & Redcay G (2003) Creating Healthy Futures: An innovative nurse-managed transition clinic for adolescents and young adults with special health care needs. Pediatric Nursing, 29(1), 25-30 Betz CL & Redcay G (2002) Lessons learned from providing transition services to adolescents with special health care needs. Issues Compr Pediatr Nurs, 25 (2), 129-49 Betz CL, Baer MT, Poulsen M, Vahanvaty U, Bare M, Haddad Y & Nwachuken G (2004) Secondary analysis of primary and preventive services accessed and perceived service barriers by children with developmental disabilities and their families. Issues in Comprehensive Pediatric Nursing, 27 (2), 83-106 Betz, CL (2007) Facilitating the transition of adolescents with developmental disabilities: Nursing practice issues and care. J Pediatric Nursing, 22(2), 103-15 Betz, CL (2006) Examining the status of special education students: Implications for pediatric nurses. J Pediatric Nursing, 21(1), 1-3 Betz, CL (2006) Self-management and adherence of children and youth with special health care needs: Implications for pediatric nursing practice. J Pediatric Nursing, 21(4), 253-5 Betz, CL (2004) Transition of adolescents with special health care needs: Review and analysis of the literature. Issues in Comprehensive Pediatric Nursing, 27, 179-241 Betz, CL (2004) Adolescents in transition of adult care: Why the concern?
Nursing Clinics of North America, 39(4, Dec), 681-713
Betz, CL (2003) Nurse's role in promoting health transitions for adolescents and young adults with developmental disabilities. Nursing Clinics of North America, 38(2), 271-89 Betz, CL (2001) Use of 504 plans for children and youth with disabilities: Nursing application. Pediatric Nursing, 27 (4), 347-352 Betz, CL (2000) California Healthy and Ready to Work: Transition health care guide: Developmental guidelines for teaching health care. Issues in Comprehensive Pediatric Nursing, 23, 203-244 Betz, CL (1999) Adolescents with chronic conditions: Linkages to adult service systems. Pediatric Nursing, 25 (5), 473-476 Betz, CL (1999) Collaborative partnerships: Building new programs and services for children. Journal of Pediatric Nursing, 14 (5), 279-280 Betz, CL (1998) Adolescent transitions: A nursing concern, Pediatric Nursing, 24 (1), 23-28 Betz, CL (1998) Facilitating the transition of adolescents with chronic conditions from pediatric to adult health care and community settings. Issues in Comprehensive Pediatric Nursing, 21(2), 97-115 Betz, CL (1998) 504 Referrals: An underutilized resource for students with special health care needs Journal of Pediatric Nursing, editorial, 13 (6) Betz, CL & Nehring, W. Eds. (2007) Promoting Health Care Transitions for Adolescents with Special Health Care Needs and Disabilities., Baltimore, MC: Paul H. Brookes Betz, CL & Redcay, G (2005) Dimensions of the transition service coordinator role. Journal of Specialty Pediatric Nursing, , 10 (2, Apr-Jun), 49-59 Betz, CL & Redcay, G (2005) An exploratory study of future plans and extracurricular activities of transition age-youth and young adults., Issues Comprehensive Pediatric Nursing, 28 (1), 33-61 Betz, CL, Redcay, G & Tan, S (2003) Self-reported health care self-care needs of transition-aged youth: A pilot study. Issues in comprehensive Pediatric Nursing, 26, 159-181 Bhakta BB, Rooney CM, Sat W, Roussonnis SH & Chamberlain MA (2000) Transition from paediatric to adult care. Arch. Dis. Child, 82, 266 Binks JA, Barden WS, Burke TA & Young, NL (2007) What do we really know about the transition to adult-centered health care? A focus on cerebral palsy and spina bifida. Arch Phys Med Rehabilitation, 88(8), 1064-73 Bjarnason, DS (2002) New voices in Iceland. Parents and adult children: juggling supports and choices in time and space., Disability & Society, 17(3), 307-326 Bjornsen, KD (2004) Health care transition in congenital heart disease: the providers' view point. Nursing Clinics of North America, 39(4), 715-26 Blacher, J. (2001) Transition to adulthood: Mental retardation, families, and culture. American Journal on Mental Retardation, 106, 173-188 Blackorby, J & Wagner, M (1996) Longitudinal postschool outcomes of youth with disabilities: Findings from the National Longitudinal Transition Study. Exceptional Children, 62, 399-413 Blaisdell CJ (2002) The adolescent with asthma: strategies for improved outcomes. 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Orthopaedic Nursing, 26(5), 296-309 Blomquist, KB (2006) Healthy and Ready to Work – Kentucky: Incorporating transition into a state program for children with special health care needs., Pediatric Nursing, 32 (6), 515-528 Blomquist, KB (2006) Health, education, work and independence of young adults with disabilities., Orthopaedic Nursing, 25 (3), 168-87 Blomquist, KB, Brown, G, Peersen, A, & Presler, EP (1998) Transitioning to independence: Challenges for young people with disabilities and their caregivers. Orthopaedic Nursing, 17 (3), 27-35 Blum RW (2002) Improving transition for adolescents with special health care needs from pediatric to adult-centered health care. Pediatrics., 110, 1301–1303 Blum RW (2002) Improving transition for adolescents with special health care needs from pediatric to adult-centered health care. Pediatrics, 110, 1301–1303 Blum, R & Smith, M (1988) Training of health professionals in adolescent health care: Study group report. 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Connections: The Newsletter of the National Center for Youth with Disabilities, 3 (3 SUPPL.), 1-8 July Blum, RW, Hodgman, CH, Jorissen, TW, Okinow, NA, Orr, D, & Slap, GB (1993) Transition from child-centered to adult-centered health-care systems for adolescents with chronic conditions: A position paper of the Society for Adolescent Medicine. Journal of Adolescent Health, 14, 570- 576 Blum, RW, Kelly, A, & Ireland, M (2001) Health-risk behaviors and protective factors among adolescents with mobility impairments and learning and emotional disabilities. Journal of Adolescent Health, 28, 481-490 Blum, RW, Resnick, MD, Nelson, R, et al. (1991) Family and peer issues among adolescents with spina bifida and cerebral palsy. Pediatrics, 88, 280-285 Bolton-Maggs, PHB (2007) Transition of care from paediatric to adult services in haematology. Archives of Disease in Childhood, 92 (9), 797-801 Boslaugh SE & Andresen EM (2006) Correlates of physical activity for adults with disability. Prev Chronic Dis. 3(3), A78. Epub 2006 Jun 15 Bottos, M., Feliciangeli, A., Sciuto, L., Gericke, C., & Vianello, A. (2001) Functional status of adults with cerebral palsy and implications for treatment for children. Developmental Medicine and Child Neurology, 43, 516-528 Bowes, G, Sinnema, G, Suris, J, & Buhlmann U (1995) Transition health services for youth with disabilities: A global perspective. Conference Proceedings. Journal of Adolescent Health, 17 (1): 23-31 Boyd, HH & Swedeen, B (2007) A person-centered, asset-based community development framework for youth with special health care needs/disabilities in transition to adulthood. Journal of Youth Development, 2 (1).
http://www.nae4ha.org/directory/jyd/jyd_article.aspx?id=910b6771-4848-45a9-a7f1-6b414c1d1443 Boyle MP, Farukhi Z, & Nosky ML (2001) Strategies for improving transition to adult cystic fibrosis care, based on patient and parent views. Pediatric Pulmonol, 32 (Dec 6), 428-36 Braj, B, Picone, G, Children, HF, Cross, N & Pearlman, L (1999) The lived experience of adolescents who transfer from a pediatric to an adult hemodialysis centre., CANNT J, 9 (4), 41-6 Bray, SR & Kwan, MY (2006) Physical activity is associated with better health and psychological well-being during transition to university life., J Am Coll Health, 55(2), 77-82 Britto MT, DeVellis RF, Hornung RW, DeFries GH, Atherton HD & Slap GB (2004) Health care preferences and priorities of adolescents with chronic illnesses. Pediatrics, 114, 1272-80 Britto MT, Garrett JM, Dugliss MAJ, Johnson CA, Majure JM & Leigh MW (1999) Preventive services received by adolescents with cystic fibrosis and sickle cell disease. Archives of Pediatric and Adolescent Medicine, 153, 27-32 Britto, M, Garrett, J & Dugliss, M (1998) Risky behavior in teens with cystic fibrosis or sickle cell disease: A multi-center study. Pediatrics, 101, 250-256 Brodin, J & Fasth, A (2001) Habilitation, support and services for young people with motor disabilities: A Swedish perspective. International Journal of Rehabilitation Research, 24(4), 309-316 Brollier, C, Sheperd, J, & Markley, KF (1994) Transition from school to community living. American Journal of Occupational Therapy, 48, 346-353 Bronheim, S, Fiel, S, Schidlow, D, Magrab, P, Boczar, K & Dillon, C (1990) Crossings: A manual for Transition of Chronically Ill Youth to Adult Health Care. Washington, DC: Georgetown University Child Development Center Bronhiem, S, Fiel, S, Schidlow, D, Magrab, P, Boczar, K, & Dillion, C (1990) Crossings: A Manual for Transition Of Chronically Ill Youth to Adult Health Care. Pennsylvania, Department of Health Brookins, GK (1993) Culture, ethnicity, and bicultural competence: Implications for children with chronic illness and disability. Pediatrics, 91 (5), 1056-1062 Brotherson MJ, Houghton J, Turnbull AP, et al (1988) Transition into Adulthood: Parental Planning for Sons and Daughters with Disabilities. Education and Training of the Mentally Retarded, 23(3), 65-74 Brotherson, M, Berdine, W, & Sartini, V (1993) Transition to adult services: Support for ongoing parent participation. Remedial and Special Education., 14,(4), 44-51 Brotherson, MJ, Houghton, J, Turnbull, AP, Bronicki, GJ, Roeder-Gordon, C, Summers, J A, et al. (1988) Transition into adulthood: Parental planning for sons and daughters with disabilities. Education and Training in Mental Retardation, 23(3), 165-174 Brown DE &Thakur MB (2006) Workforce development for older youth. New Dir Youth Dev., 111 (Fall), 91-104, 10-1 Brown, BV, Moore, KA & Bzostek, S (2004) A statistical portrait of well-being in early adulthood. Cross Currents, Issue 2, August 2004, Child Trends Publication # 2004-18. www.childtrendsdatabank.org and based on longer version (2003) at http://www.hewlett.org/archives/publications/portraitofwellbeing.htm Brumfield, K &Lansbury, G (2004) Experiences of adolescents with cystic fibrosis during their transition from paediatric to adult health care: A qualitative study of young Australian adults. Disabil Rehabil, 26(4), 223-34 Bruyere, SM (1993) Participating action research: Overview and implications for family members of person with disabilities. Journal of Vocational Rehabilitation., 3 (2), 62-68 Bryan T, Stiles N, Burstein K, Ergul C & Chao, P-C (2007) "Am I supposed to understand this stuff?" Youth with special health care needs readiness for transition. Education and Training in Developmental Disabilities, 42, 330-338 Bryden K, Peveler R, Stein A, Neil A, Mayou R & Dunger, D (2001) Clinical and psychological course of diabetes from adolescence to young adulthood: A longitudinal cohort study. Diabetes Care, 24, 1536-1540 Bryon, M & Madge, S (2001) Transition from paediatric to adult care: psychological principles. Journal of the Royal Medical Society, 94 (Supplement 40), 5-7 Buck D, Smith M, Appleton R, Baker GA & Jacoby A (2007) The development and validation of the Epilepsy and Learning Disabilities Quality of Life (ELDQOL) scale. Epilepsy Behav, 10(1):38-43, Epub 2006 Nov 28 Bullis, M, Morgan, T, Benz, M, Todis, B & Johnson, MD (2002) Description and evaluation of the ARIES Project: Achieving rehabilitation, individualized education, and employment success for adolescents with emotional disturbance. Career Development for Exceptional Individuals, 25, 41-58 Buran CF, Sawin KJ, Brei TJ & Fastenau PS (2004) Adolescents with myelomeningocele: Activities, beliefs, expectations, and perceptions. Developmental Medicine & Child Neurology, 46(4), 244-252 Buran, CF, McDaniel, AM & Brei, TJ (2002) Needs assessment in a spina bifida program: Acomparison of the perceptions by adolescents with spina bifida and their parents. Clinical Nurse Specialist, 16, 256-262 Buran, CF, Sawin, KJ, Brei, TJ & Fastenau, PS (2004) Adolescents with myelomeningocele: Activities, beliefs, expectations, and perceptions. Dev Med Child Neurol, 46, 244-52 Burlew K, Telfair J, Colangelo L, & Wright EC. (2000) Factors that influence adolescent adaptation to sickle cell disease. J Pediatr Psychol, 25, 287-299 Burns, JJ, Sadof, M & Kamat D (2006) The adolescent with a chronic illness., Pediatr Ann, 35(3), 206-10, 214-16 Burns, JJ, Sadof, M & Kamat D (2006) The adolescent with a chronic illness., Pediatr Ann, 35(3), 206-10, 214-16 Burstein, K, Bryan, T & Chao, P (2005) Promoting self-determination skills among youth with special health needs using participatory action research. Journal of Developmental and Physical Disabilities, 17 (2), 185-201. Burstein, K, Bryan, T, Chao, PC, Berger, K & Hirsch, D (in press, 2005-6) Communication patterns of primary care pediatricians, parents, and children with and without special health care needs. Journal of Developmental and Physical Disabilities Burstein, K, Bryan, T, Chao, PC, Berger, K & Hirsch, D (2005) Communication patterns of primary care pediatricians, parents, and children with and without special health care needs., Journal of Developmental and Physical Disabilities, 17 (3), 249-262 Busse FP, Hiermann P, Galler A, Stumvoll M, Wiessner T, Kiess W, Kapellen TM (2007) Evaluation of patients' opinion and metabolic control after transfer of young adults with type 1 diabetes from a pediatric diabetes clinic to adult care. Horm Res., 67(3), 132-8, Epub 2006 Oct 25
Yearly update December 2007
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