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TYPE OF TOOL
NAME OF TOOL AND DESCRIPTION
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GUIDELINES AND POLICY STATEMENTS
Guidelines:
General Adolescent
Guidelines for Adolescent Preventive Services (GAPS)
The AMA's Guidelines for Adolescent Preventive Services (GAPS) is a comprehensive set of recommendations for preventive health services. The GAPS recommendations were designed to be delivered ideally as a preventive services package during a series of annual health visits between the ages of 11-21. GAPS implementation materials include downloadable questionnaires in English and Spanish.

The Parent Package is designed to help primary care providers share important information about adolescence with parents. There are 15 reproducible tip sheets in the package. Each tip sheet addresses a different topic and contains useful facts, parenting tips, and resources to help parents guide their teens to become healthy, responsible, young adults.
www.ama-assn.org

ama- assn.org /ama/ pub/category/1981.html
Guidelines: General for Children and Adolescents Bright Futures
Bright Futures is dedicated to the principle that every child deserves to be healthy and that optimal health involves building a trusting relationship between the health professional, the child, the family, and the community as partners in health practice. The guidelines present a detailed framework for health professionals, in partnership with families, to promote the developmental health and well-being of children from birth to young adulthood. Websites provide on-line the entire Bright Futures in Practice books on general growth and development and preventive health visit recommendations, mental health, nutrition, physical fitness, and oral health plus Health Professional Encounter Forms and Family Tip Sheets.
www.brightfutures.org

brightfutures.aap.org
Guidelines: For Families Bright Futures from Family Voices - Resources for families developed by Family Voices based on the Bright Futures materials. This site includes developmentally focused information for infancy, early childhood, middle childhood and adolescence as well as information related to transition. brightfuturesfor
families.org/
Transition Policy Statement A Consensus Statement on Health Care Transitions for Young Adults With Special Health Care Needs - American Academy of Pediatrics, American Academy of Family Physicians and American College of Physicians-American Society of Internal Medicine. This consensus document highlights six specific recommendations for health care providers designed to improve transition outcomes for youth with special health care needs. aap.org

aappolicy.aappublic
ations.org/cgi/content/
full/pediatrics;110/6/
S1/1304
Guidelines: Transition for CYSHCN CHOICES Transition Guidelines
Guidelines support a comprehensive, developmental approach to transition. These guidelines include recommendation for families of infants, toddlers, preschooler, school-age children and youth in their early, mid and late teens. Domains include health promotion, health condition management, developmental and functional independence, social/emotional health, school to work issues and health transition.
shrinershq.org/choices

http://chfs.ky.gov/ccshcn
Guidelines: Transition for CYSHCN HRTW-CA Transition guidelines
Guidelines to encourage the development of transition skills for specific developmental ages. Topics: knowledge of health condition and management, preventive health care, emergency measures, environmental modifications and accommodations, using community resources, communication strategies, meeting developmental needs and encouraging responsible sexual behavior.
www.cahrtw.org
Guidelines: Transition for youth with specific conditions (examples) Transition Guidelines for People with Bleeding Disorders Hemophilia Association www.hemophilia.org/
research/masac/
masac147.pdf
Position Statement: Gastroenterology Patients in Transition from Childhood to Adulthood
World Gastroenterology Organization
omge.org/guidelines/
statement02/
s_data2_en.htm
Guidelines for the Care of Children and Adolescentswith Autism and Pervasive Developmental Disorders cdrc.ohsu.edu/oscshn1/
medicalhome/docs/
autism.pdf
Transition of Patients with Sickle Cell Disease from Pediatric to Adult Care sickle.bwh.harvard.edu/
transition.html
PKU Clinic Adolescent Transition Curriculum
8-visit curriculum to help youth develop a personal plan for responsibility for health care and PKU management.
depts.washington.edu
/pku/
Guidelines for Transition of youth with variety of conditions from Connecticut Children’s Medical Center ccmckids.org/programs/
transition.asp
 

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The HRTW Center is headquartered at the Maine State Title V CSHN Program. Activities are coordinated through the Maine Support Network's Center for Self-Determination, Health and Policy. The Center is funded through a cooperative agreement (U39MC06899-01-00) from the Integrated Services Branch, Division of Services for Children with Special Health Care Needs (DSCSHN) in the Federal Maternal and Child Health Bureau (MCHB), Health Resources and Service Administration (HRSA), Department of Health and Human Services (DHHS).
Elizabeth McGuire, HRSA/MCHB Project Officer.