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DISABILITY – GENERAL

Access to Disability Data
www.infouse.com/disabilitydata/

CDC - DisAbility & Health
www.cdc.gov/ncbddd/dh/

Current Population Survey (CPS)
www.bls.census.gov/cps
The Current Population Survey (CPS) is a monthly survey of about 50,000 households conducted by the Bureau of the Census for the Bureau of Labor Statistics. The survey has been conducted for more than 50 years. The CPS is the primary source of information on the labor force characteristics of the U.S. population. The sample is scientifically selected to represent the civilian noninstitutional population. Respondents are interviewed to obtain information about the employment status of each member of the household 15 years of age and older. The sample provides estimates for the nation as a whole and serves as part of model-based estimates for individual states and other geographic areas. Estimates obtained from the CPS include employment, unemployment, earnings, hours of work, and other indicators. They are available by a variety of demographic characteristics including age, sex, race, marital status, and educational attainment. They are also available by occupation, industry, and class of worker. Supplemental questions to produce estimates on a variety of topics including school enrollment, income, previous work experience, health, employee benefits, and work schedules are also often added to the regular CPS questionnaire. Website is gateway to other related surveys

UCSF - Disability Statistics Center
http://dsc.ucsf.edu/main.php

US Census - Disability Statistics
www.census.gov/hhes/www/disability/disability.html

INTERAGENCY SUBCOMMITTEE ON DISABILITY STATISTICS
Disability Statistics Web Pages
www.ncddr.org/
The Interagency Subcommittee on Disability Statistics (ISDS) membership includes persons from within and outside the Federal Government. The ISDS considers itself an information sharing, and networking agent in order to build a more systematic and cohesive Federal effort. The ISDS's networking function identifies persons nationally and internationally to: participate on survey instrument development, review, and analyses; serve on expert panels; and to recruit persons for job openings

NATIONAL ORGANIZATION ON DISABILITY NOD/HARRIS POLL
Harris Survey of Americans with Disabilities, 2000, 2004
www.nod.org and http://www.nod.org/index.cfm?fuseaction=Page.viewPage&pageID=31
or www.harrisinteractive.com
Results of nationwide surveys of people with disabilities in 1986, 1994 & 1998 and 2000, 2004 (on-line and telephone) compared with people without disabilities; also trends in community participation across the last decade.

EDUCATION

National Institute on Disability and Rehabilitation Research (NIDRR)http://www.ed.gov/about/offices/list/osers/nidrr/index.html?src=mr
The National Institute on Disability and Rehabilitation Research (NIDRR) provides leadership and support for a comprehensive program of research related to the rehabilitation of individuals with disabilities. All of our programmatic efforts are aimed at improving the lives of individuals with disabilities from birth through adulthood. Multiple reports focusing on health, education, work, and community participation status of people with disabilities

NLS - National Longitudinal Study of Special Education Students
stats.bls.gov/nls/home.htm
Groundbreaking study which for 6 years, tracked, collected data from, and reported on the experiences of more than 8,000 secondary school students with disabilities nationwide. Data were collected repeatedly from telephone interviews with youth and parents, from school records for multiple years, and from surveys of teachers and administrators in the schools attended by sample members. Descriptive and explanatory analyses of a wide range of outcomes were provided, including school performance and school completion, social integration, arrest rates, employment status and quality, and independent functioning. The influences of individual and household characteristics and of school experiences and related services on these outcomes were assessed. Sub-studies examined issues related to gender differences in special education services, adult services provided after secondary school, issues related to dropping out of school, and services provided to Hispanic students and those in particular disability categories (e.g., learning disabilities, serious emotional disturbances). SRI International has a number of ongoing studies of children and youth with disabilities.

NLTS2 - National Longitudinal Transition Study-2 (NLTS2)
www.nlts2.org/
Project Summary - NLTS2 is a 10-year study of the experiences of young people who were 13 to 17 years old and receiving special education in the 2000-2001 school year. The sample of approximately 13,000 youth is nationally representative of youth with disabilities in that age group as a whole and those in each federal special education disability category.

OSEP - NATIONAL CENTER ON EDUCATIONAL OUTCOMES
Principles and Characteristics of Inclusive Assessment and Accountability Systems: Synthesis Report
http://education.umn.edu/nceo/
see Part of the "Ideas That Work" series. National Center on Educational Outcomes provides national leadership in the participation of students with disabilities in national and state assessments, standards-setting efforts, and graduation requirements.

US DEPARTMENT OF EDUCATION
National Center for Education Statistics
www.nces.ed.gov
nces.ed.gov/quicktables/

EMPLOYMENT - DISABILITY

DoL- DEPARTMENT OF LABOR
Statistics About People with Disabilities and Employment
www.dol.gov/odep/pubs/ek01/stats.htm
Although many people with disabilities are being employed and remaining employed, the unemployment rate for people with disabilities is unacceptably high, as shown in the 1994-95 National Health Interview Survey. This survey found that 79 percent of adults without disabilities were working at the time they were interviewed and only 37 percent of those with disabilities were employed. Two federally funded studies published in 2000 give some insight into why the unemployment rate is so high among persons with disabilities and provide data on what employers are doing in the areas of employing and accommodating workers with disabilities

NLS - DEPARTMENT OF LABOR, BUREAU OF LABOR STATISTICS
National Longitudinal Study of Youth (1979) and (1997)
stats.bls.gov
The National Longitudinal Surveys (NLS) are sponsored by the Bureau of Labor Statistics (BLS) with data collection undertaken for the BLS by the US Bureau of the Census and the National Opinion Research Center. The survey provides information on employment experiences, schooling, family background, social behavior and other characteristics.

VOCATIONAL REHABILITATION

CENTER ON STATE SYSTEMS & EMPLOYMENT
www.communityinclusion.org/rrtc/Research/StateProfiles/StateProfiles.htm

Profiles by State - Analysis of existing state and federal databases including the National Health Interview Survey Disability Questionnaire and the Survey of Income and Program Participation will be used to provide a national perspective on employment outcomes. This strand will establish state profiles using existing data sets and conduct predictive modeling to identify the characteristics of successful state systems.
[RSA-911 Data Tapes, MR/DD Surveys, Demographics]

FAMILY VOICES - Access to Rehabilitation Services and Technology for Children with Special Health Care Needs: Findings and Recommendations for Families and Providers. 9/01.
www.familyvoices.org/YourVoiceCounts/AccessToRehabSvcs-ExecSum.pdf

RSA - Longitudinal Study of the Vocational Rehabilitation (VR)
Services Characteristics and Outcomes of Former vs Consumers With An Employment Outcome

http://www.ed.gov/rschstat/landing.jhtml?src=rt
Department of Education has multiple studies of outcomes of education and rehabilitation programs.

Other Data to Know Links:
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The HRTW Center is headquartered at the Maine State Title V CSHN Program. Activities are coordinated through the Maine Support Network's Center for Self-Determination, Health and Policy. The Center is funded through a cooperative agreement (U39MC06899-01-00) from the Integrated Services Branch, Division of Services for Children with Special Health Care Needs (DSCSHN) in the Federal Maternal and Child Health Bureau (MCHB), Health Resources and Service Administration (HRSA), Department of Health and Human Services (DHHS).
Elizabeth McGuire, HRSA/MCHB Project Officer.