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Materials, Policy Briefs & Tools
developed by the HRSA/MCHB funded Healthy & Ready to Work Projects

SYSTEMS & SERVICES
  • INTERAGENCY

  • Transition: Together We Can. (Stages of development of interagency relationships), HRTW National Center, 2003. [pdf]

    Service Tapestry - .Model regional information Database is a searchable collection of agencies and programs. HRTW-ME, 2001. www.umaine.edu/cci/servicetapestry/index.htm

  • STATE TITLE V CSHCN

  • 15 Things Title V Can Do! HRTW National Center, 2003. [Word] [pdf]

    HRTW Services & State Title V CSHCN Programs: What We Know Now
    Short & Sweet Survey-2002, HRTW National Center, 2003. [Word] [pdf] Fall 2003.

    Needs Assessment Survey for Transition Programs, HRTW National Center, 2003. [Word] [pdf]

    State Title V Rehabilitation Services: The Federal Law & How States Implement It, HRTW-ICHP, 2000. [pdf]

    Summary, Outcomes & Impact, HRTW-ME 2001
    www.umaine.edu/cci/service/matp/matpinfo.htm
    Brief overview and products from the MCHB funded HRTW Project 1997-2001.

    Draft 10-Year HRTW/Transition Plan, Healthy and Ready to Work (HRTW)/ Transition Work Group, 2000.Draft Goal and Desired Outcomes to "Ensure that all youth with special health care needs receive the services they need to make necessary transitions to all aspects of adult life, including adult health care, work, and independence."

    pdf]

    Understanding the 504 Statute: The Role of State Title V Programs and Health Care Providers, HRTW-ICHP, 2000. [pdf]

  • SERVICES & BENEFITS

  • State-By-State Transition Overview: Government Programs, HRTW National Center, 2003. [Word] [pdf] Fall 2003.

    Summary of Services for Youth with Special Health Care Needs, HRTW-KY, 2003. chs.ky.gov/commissionkids
    (click on Youth Transitions, then New Resources or Life Maps/ Teaching Sheets)

    Understanding Income Eligibility: A Guide for YSHCN and Families, HRTW National Center, 2003. [Word] [pdf] Fall 2003.

YOUTH INVOLVEMENT

Youth As Advisors, HRTW National Center, 2003.


Youth Leaders: application form, HRTW National Center, 2003. [Word] [pdf] Sample - feel free to adapt!

Youth Speak! – five presentations describing what adolescents want other to know. HRTW- ME, 2002. www.umaine.edu/cci/service/maineworks/youthspeak.htm

Youth Educators and Advocators of Maine - YEA ME, HRTW- ME, 2002. www.umaine.edu/cci/service/maineworks/yeame/

Maine Works for Youth! On-Line Discussion Board, HRTW- ME, 2002. www.umaine.edu/cci/matpdisc_frm.htm

MeWorks! Pages for Youth and Young Adults, HRTW- ME, 2002. www.umaine.edu/cci/service/maineworks/youth/index.htm

TOOLS & SOLUTIONS
  • HRTW CURRICULUMS, GUIDES & TRAINING MODULES


  • Areas of Assessment for Transition Planning – Transition Assessment Questions, HRTW-KY, 2003. chs.ky.gov/commissionkids
    (click on Youth Transitions, then New Resources or Life Maps/ Teaching Sheets)

    Health Insurance Curriculum: Learning about Health Insurance – A grade 5-12 curriculum aligned with Maine’s Learning Results. HRTW-ME, 2003. www.umaine.edu/cci/service/maineworks/healthinscurr/index.htm

    HRTW-PAR Curriculum, HRTW-AZ, 2003.
    CONTACT: Tanis Bryan tanishbr@aol.com

    Life Maps Teaching Sheets – One-pagers related to topics, HRTW-KY, 2003. chs.ky.gov/commissionkids
    (click on Youth Transitions, then New Resources or Life Maps/ Teaching Sheets)
    Also see - Life Maps – screening tools for ages birth through 21, HRTW-KY, 2003.

    Modules for Adult Professionals: Reimbursement Strategies; Medical Forms (Long Term Care); Communication/ Medical Encounters; Physical Environment; and Care Coordination, HRTW-AZ, 2003. CONTACT: tanishbr@aol.com

    Transition for Adolescents with Special Health Care Needs and Disabilities: Information for Families and Teens. Also contains tools and checklists. HRTW-MA, 2000. www.communityinclusion.org/transition/familyguide.html

    Transition for Adolescents with Special Health Care Needs and Disabilities: A Guide for Health Care Providers. Addresses four aspects of adulthood: health, education, employment and recreation. HRTW-MA, 2000 www.communityinclusion.org/transition/providerguide.html

    Transition Guidelines for ages 11-21, HRTW-KY, 2003.
    chs.ky.gov/commissionkids
    Includes 2010 Healthy People Objectives,
    (click on Youth Transitions, then New Resources or Life Maps/ Teaching Sheets)

  • HEALTH & EDUCATION


  • Staying Healthy Tips: School & Attendance Issues, HRTW National Center, 2003. [Word] [pdf]


    Tips: No Cost Ideas for Educators, HRTW National Center, 2003. [Word] [pdf]


    Post-Secondary – After High School

    College Preparation Timeline, HRTW-KY, 2003. chs.ky.gov/commissionkids
    (click on Youth Transitions, then New Resources or Life Maps/ Teaching Sheets)

    Paying for Education after High School, HRTW-KY, 2003. chs.ky.gov/commissionkids
    (click on Youth Transitions, then New Resources or Life Maps/ Teaching Sheets)


  • HEALTH & LIVING: COMMUNITY, INDEPENDENCE AND ACCESS

  • 8 Steps to Follow when Hiring a Personal Care Attendant (PCA), HRTW-KY, 2003. chs.ky.gov/commissionkids
    (click on Youth Transitions, then New Resources or Life Maps/ Teaching Sheets)

    Activities to Help Prepare for Independence,
    HRTW-KY, 2003. chs.ky.gov/commissionkids
    (click on Youth Transitions, then New Resources or Life Maps/ Teaching Sheets)

    Community Access Surveys: Baseball Stadium, Movie Theaters, Shopping Malls in Arizona, HRTW-AZ, 2003. CONTACT: Tanis Bryan tanishbr@aol.com

    So You Want to Drive- news brief, HRTW-AZ, 2003.
    CONTACT: Tanis Bryan tanishbr@aol.com



  • HEALTH & TRANSITION


  • For Families: Transition Top 10 List! HRTW National Center, 2003. [Word] [pdf]

    Key Transition Issues for Youth with Disabilities and Chronic Health Conditions, HRTW-ICHP, 2000. [pdf]

    VIDEO - Guardianship and Alternatives to Guardianship in Wisconsin, HRTW-WI, 2003.
    Overview of decision-making choices available to families and youth as the youth approaches 18. CONTACT: Amy Whitehead whitehead@waisman.wisc.edu

    CD - The Basics of Adolescent Transition for Youth with Special Health Care Needs,
    HRTW-WI, 2003. This “CSHCN Wis Line” is an audio recording of a live presentation on a variety of topics related to transition in Wisconsin. Speakers share their information on transition from the following perspectives: Specialty clinic; Department of Public Instruction; Department of Health and Family Services, Division of Health; ABC for Health- a law advocacy firm; consumer; parent; and Guardianship Support Center.
    CONTACT: Amy Whitehead whitehead@waisman.wisc.edu

    Systematic Transition Plan, HRTW-AZ, 2003.
    CONTACT:Tanis Bryan tanishbr@aol.com

    Transition: HIP YIP (HIP- Youth Independence Plan) HRTW-AZ, 2003.
    CONTACT: Tanis Bryan tanishbr@aol.com

    Roadmap to Success: A Path to Fulfilling Your Goals, HRTW-ME, 2003.
    www.umaine.edu/cci/service/maineworks/triptik.htm
    This pamphlet was produced by the YEA ME advisory council and includes important benchmarks and activities to prepare youth for adult life.



  • HEALTH & WORK


  • At a Glance: Vocational Rehabilitation: Section 301 Benefits For Transition Planning, HRTW-OH, 2001. [Word] [pdf]

    FINANCES & BENEFITS: Section 301: How to Keep SSI and Medicaid after your 18th birthday, HRTW-OH, 2001. [Word] [pdf]

    Special Help for Youth in Transition – SSI Work Incentives and VR, HRTW-KY
    , 2003. chs.ky.gov/commissionkids
    (click on Youth Transitions, then New Resources or Life Maps/ Teaching Sheets)



  • NEWSLETTERS


  • Transition Newsletters, HRTW-KY, 2000-2003. chs.ky.gov/commissionkids
    (click on Youth Transitions, then New Resources or Life Maps/ Teaching Sheets are in pdf.)


  • SEXUALITY


  • Sexuality Issues for Youth with Disabilities and Chronic Health Conditions,
    HRTW-ICHP, 2000 [pdf]


  • SCREENING & ASSESSMENT TOOLS: CHECK LISTS, FAMILY/YOUTH EDUCATION AND EVALUATION MATERIALS


  • Core Transition Outcome Survey Questions for Program Graduates, HRTW National Center, 2003. [Word] [pdf]

    Growing Up Time - Important Ages! Key Information for IEPs and Benefits, HRTW-OH, 2001. [Word] [pdf]

    Health Transition Tools – Web Links to various tools, HRTW National Center, 2003. [Word] [pdf]

    Life Maps – screening tools for ages birth through 21, HRTW-KY, 2003. chs.ky.gov/commissionkids
    (click on Youth Transitions, then New Resources or Life Maps/ Teaching Sheets)

    Transition Guidelines – framework for teaching self care skills to children and youth: ages birth-adolescence. HRTW-CA, 2000. www.cahrtw.org

    Transition Health Care Assessment – Professional and Adolescent versions. HRTW-CA, 2000. www.cahrtw.org


  • WEB CONNECTIONS


  • 10 Web sites to Help with Teen Transition, HRTW-KY, 2003. chs.ky.gov/commissionkids
    (click on Youth Transitions, then New Resources or Life Maps/ Teaching Sheets)

    Me Works! Adolescent and Transition Links , HRTW-ME, 2002. www.umaine.edu/cci/service/maineworks/meworkslinks.htm

    Tips for Evaluating Internet Sites for Credibility, HRTW-KY, 2003. chs.ky.gov/commissionkids
    (click on Youth Transitions, then New Resources or Life Maps/ Teaching Sheets)

    Web Connections: Selected Health/HRTW Issues: People, Ideas & Materials,HRTW National Center, 2003. [Word] [pdf]

HEALTH CARE
  • ACCESS TO QUALITY HEALTH CARE


  • Finding and Using Adult Health Care, HRTW-KY, 2003. chs.ky.gov/commissionkids
    (click on Youth Transitions, then New Resources or Life Maps/ Teaching Sheets)

    Healthy & Ready to Work: Understanding the Role of Health Care Providers During the Transition of Adolescents with Health Conditions, HRTW-OR, 2001. cdrc.ohsu.edu/selfdetermination/health/wellness/research.htm



  • HEALTH INSURANCE (PUBLIC & PRIVATE)

  • Private Insurance Tips, HRTW-KY, 2003. chs.ky.gov/commissionkids
    (click on Youth Transitions, then New Resources or Life Maps/ Teaching Sheets)

    Youth with Disabilities in Transition: Health Insurance Options and Obstacles, HRTW-ICHP, 2000. [Word] [pdf]



  • MEDICAL HOME / MEDICAL APPOINTMENT / MEDICAL INFORMATION

  • Medical Home

    Tips: Low Cost-No Cost Ideas for Physicians, HRTW National Center, 2003. [Word] [pdf]


    Medical Appointment

    Adolescent Health Care – list of ideas for discussion/evaluation at health care visits, HRTW-KY, 2003. chs.ky.gov/commissionkids
    (click on Youth Transitions, then New Resources or Life Maps/ Teaching Sheets)


    Medical Information


    Portable Medical Summaryone page template, HRTW National Center, 2003. [Word] [pdf] Sample you can adapt! Youth can carry this one page sheet in their wallets - and - also place in their medical file at home. Caregivers, health surrogates, school medical contacts or selected others may also want to have a copy too.

    The Maine CARE Notebook, HRTW-ME, 2003.
    www.umaine.edu/cci/service/maineworks/carenotebook.htm
    Designed to be a tool to assist caregivers in the recording keeping of their child’s life and medical journey.

  • PAYING THE BILLS
 

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The HRTW Center is headquartered at the Maine State Title V CSHN Program. Activities are coordinated through the Maine Support Network's Center for Self-Determination, Health and Policy. The Center is funded through a cooperative agreement (U39MC06899-01-00) from the Integrated Services Branch, Division of Services for Children with Special Health Care Needs (DSCSHN) in the Federal Maternal and Child Health Bureau (MCHB), Health Resources and Service Administration (HRSA), Department of Health and Human Services (DHHS).
Elizabeth McGuire, HRSA/MCHB Project Officer.