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FAMILY
INFO - National Organizations
MCHB - Family To Family
Health Information Centers
http://www.familyvoices.org/F2F.htm
HRSA has awarded community-based organizations to
establish a network of statewide centers run by families of children with
special health care needs (CSHCN) to help other families with special needs
children. These centers, called Family-To-Family Health Care Information
and Education Centers for Families of Children with Special Health Care Needs,
will be designed and supervised by families in partnership with State Title
V CSHCN programs and other providers.
FAMILY VOICES
www.familyvoices.org
Family Voices is a national, grassroots clearinghouse for information and education
concerning the health care of children with special health needs. We stay on
top of public and private sector health care changes that affect our children
and families through the collective efforts of our families: a volunteer Coordinator
in every state; 10 Regional Coordinators; and a small staff working in several
locations around the country.
FAMILY VOICES - BRIGHT FUTURES
www.brightfuturesforfamilies.org/
Bright Future for Families is a national initiative for families
and communities to promote and improve the health and well-being
of children of all ages. Site offers resources for families
based on the award winning, federally supported Bright Futures
initiative, developed through the support of public health,
non-profit and corporate organizations.
THE FAMILY VILLAGE
www.familyvillage.wisc.edu
A global community that integrates information, resources
and communication opportunities on the Internet for persons
with cognitive and other disabilities,
their families, and those that provide them services and supports:
FAMILIES USA
www.familiesusa.org
Advocates for high-quality, affordable health care, publishes numerous policy
papers and hosts the Medicaid Clearinghouse
NICHCY - National Information Center for Children and
Youth with Disabilities
www.nichcy.org/
National information and referral center that provides information on disabilities
and disability-related issues for families, educators, and other professionals;
focuses specifically on children and youth (birth to age 22) and has several
useful articles and contact sheets for parents.
TATRA - Technical Assistance Alliance for Parent Centers
www.taalliance.org/
The TATRA Project provides financial and administrative support to ten parent
centers participating in the RSA parent training initiative that enables participating
parent centers to develop as a "Center of Expertise." Each center
focuses on a specialized Vocational Rehabilitation (VR) topic affecting families
of young adults with disabilities.
TATRA -Parent Training and Information Centers
www.taalliance.org/Centers/index.htm
Parent Training and Information Centers (PTIs) and Community
Parent Resource Centers (CPRCs) in each state provide training
and information to parents of infants, toddlers, children,
and youth with disabilities and to professionals who work
with children. This assistance helps parents to participate
more effectively with professionals in meeting the educational
needs of children and youth with disabilities. The Parent
Centers work to improve educational outcomes for children
and youth with all disabilities (emotional, learning, mental,
and physical).
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