|
Data to Know For tracking
youth transitioning to adulthood.
Measuring and monitoring youth transition experiences is
important to determine if programming is effective. States
and other agencies can use existing data sources to track
the effectiveness of their programming. In addition, local
and state surveys can be compared with data from these sources.
• YOUTH/YSHCN
ANNIE CASEY - Kids Count, 2002
www.aecf.org/kidscount/
KIDS COUNT has compiled indicators of child well-being from
the 2000 U.S. Census and created an interactive online database.
The site consists of data from the Census Short Form and
is being updated weekly as the Census Bureau releases new
data from the Long Form. Rankings on socioeconomic indicators
will be available after all 50 states have been released.
FEDERAL INTERAGENCY FORUM ON CHILD AND FAMILY STATISTICS
Childstats.gov
www.childstats.gov/
The Federal Interagency Forum on Child and Family Statistics
was established in 1994 to coordinate the collection of federal
data on child and family issues and conditions. Childstats.gov,
the Forum's official Website, serves as a clearinghouse for
Forum reports and publications. In addition to these publications,
the site also offers a contact list for federal statistics
on children and families and a collection of related links.
National Institute on Disability and Rehabilitation Research
(NIDRR)
www.ed.gov/offices/OSERS/NIDRR
The National Institute on Disability and Rehabilitation Research (NIDRR) provides
leadership and support for a comprehensive program of research related to the
rehabilitation of individuals with disabilities. All of our programmatic efforts
are aimed at improving the lives of individuals with disabilities from birth
through adulthood. Multiple reports focusing on health, education, work, and
community participation status of people with disabilities National Adolescent Health Information Center (NAHIC)
youth.ucsf.edu/nahic
The overall goal of NAHIC is to improve the health of adolescents by serving
as a national resource for adolescent health information and research and to
assure the integration, synthesis, coordination and dissemination of adolescent
health-related information.
National Longitudinal Surveys of Youth
stats.bls.gov/nls/home.htm
The National Longitudinal Surveys (NLS) are a set of surveys designed to gather
information at multiple points in time on the labor market activities and other
significant life events of several groups of men and women. For more than 3
decades, NLS data have served as an important tool for economists, sociologists,
and other researchers. Longitudinal studies started with one cohort in 1979
and another in 1997.
National Longitudinal Transition Survey - 2
www.nlts2.org/
NLTS2 is a study begun in 2001 that is funded by the U.S.
Department of Education. Over the next several years, NLTS2
will document the experiences of a national sample of students
as they move from high school into adult roles.
NLTS2 is focusing on a wide range of important topics, such
as high school coursework, extracurricular activities, academic
performance, postsecondary education and training, employment,
independent living, and community participation. NLTS2 is
producing information of interest to many audiences, including
state and local education agencies, the U.S. Congress, the
U.S. Department of Education, parents, teachers, researchers,
advocates, and policy-makers.
CDC – NATIONAL CENTER FOR HEALTH STATISTICS
(NCHS)
National Survey of Children with Special Health Care Needs
Survey
www.cdc.gov/nchs/about/major/slaits/cshcn.htm
National Center for Health Statistics - The primary goal
of this module is to assess the prevalence and impact of
special health care needs among children in all 50 States
and the District of Columbia. This survey explores the extent
to which children with special health care needs (CSHCN)
have medical homes, adequate health insurance, and access
to needed services. Other topics include care coordination
and satisfaction with care.
More than 3,000 households with children were screened in
order to identify 750 children with special needs in each
State. Interviews were conducted with their parents. Also,
brief health insurance interviews were conducted for children
without special needs to estimate State-level health care
coverage using equivalent-sized samples in each State. Finally,
for uninsured children from low-income households, questions
about parents' awareness of and experience with Medicaid
and the State Children's Health Insurance Program were asked
CDC – NATIONAL CENTER FOR HEALTH STATISTICS
(NCHS)
SLAITS, State and Local Area Integrated Telephone Survey
www.cdc.gov/nchs/slaits.htm
Website
includes the questionnaire for the MCHB National Survey on
Children with Special Health Care Needs. Other resources
include data, surveys, initiatives, and research programs.
MCHB plans to repeat this survey every four years.
FAMILY VOICES – CSHCN by State
www.familyvoices.org/drc/index.html
Information on the number of children with special health
care needs by state, the number of children with special
health care needs per household by state, and other resources
and information on the National Survey of CSHCN. FAMILY VOICES KASA (Kids As Self-Advocates)
www.fvkasa.org/
Two surveys conducted via KASA web site targeted to youth
and those who work with youth. Funded by the Princess Diana
Foundation, the survey requests opinions and responses regarding
developing programs and materials that assist youth with
special health care needs to grow up and become healthier
productive adults. Findings are expected to be published
in 2003.
HRSA/ MCHB - Title V Systems Information Data
www.mchdata.net
Data from 59 U.S. States, Territories, and Jurisdictions
are from the States' annual Block Grant applications and
reports. Data on number of children and youth with special
health care needs served by State Title V Programs. Block
Grant report and status on progress to meet performance measures.
NATIONAL YOUTH LEADERSHIP NETWORK
Surveys for Youth 2002
www.nyln.org/home/youth_vote
The National Youth Leadership Network (NYLN) is a voice for
young people with disabilities across the United States,
ages 16-24. The policy agenda is a set of suggestions on
what things should change and how to make things better for
other young people with disabilities in our country. In 2002,
the NYLN conducted an email survey targeted at youth with
disabilities, ages 16 - 24. The survey is requesting opinions
of the youth what they believe are the best ways to assist
to build a successful adult life (employment, college, independent
living). The results will be given to federal and state agencies
that assist youth (for example, the Social Security Administration
and Department of Education). The results also will be posted
on their web site.
-
2002 NYLN Policy Agenda Ballot - youth vote on future NYLN's
policy agenda.
-
2002 Youth Survey - NYLN best ways to build a successful
adult life.
PACER Center, Minneapolis, MN
www.pacer.org
Over 1100 with HSCN ages 14-25 were asked what they needed
to be successful in adulthood. They clearly stated that the
most important was jobs and job training with independent
living skills and college and vocational counseling close
behind. Lower on the list was finding and paying for medical
care. Though being in good health is an essential component
to performance in the workplace, adolescents with HSCN see
the more important of the two (health, employment) being
a way to earn money. (Wright, 1996)
• HEALTH– YOUTH
DATA SETS
FACCT - Foundation for Accountability
www.facct.org
FACCT - Foundation for Accountability is a national organization
working to improve health care for Americans by advocating
for an accountable and accessible system where consumers
are partners in their care and help shape the delivery of
care. FACCT believes that America's ability to create a more
responsive health care system depends on informed, motivated
consumers who help shape the system and hold it accountable
for quality.
NATIONAL ADOLESCENT HEALTH INFORMATION CENTER (NAHIC)
youth.ucsf.edu/policycenter/projects.html
-
Policy Center Website / YouthLinks
The Policy Center Website established an online data tool
for researchers and health-care professionals with descriptions
of and access to many middle childhood- and adolescent-health
related datasets and other related informational sources.
The new data tool, Youthlinks, will provide users with an
online database of pre-reviewed resources, searchable by
a variety of fields.
- Adolescent Health Report Card
Establish a comprehensive portrait of adolescent health status
based on a wide range of health, mental health, education,
juvenile justice, economic/employment, and public policy
data. Sponsored by the William T. Grant Foundation, this
project is placing adolescent health within a developmental,
lifespan framework that links adolescent health with that
of adults, and attempts to emphasize positive health behaviors
and outcomes. It is documenting the limitations of existing
data sources and making recommendations for improving data
collection and reporting systems. Finally, it is helping
communities, counties and states to translate national
level data and to establish an agenda for adolescent health
at the local level.
• SSI DATA - STATE BY STATE, December 2007
Table 7: Number and percentage distribution of children receiving federally administered SSI payments, by selected characteristics: Age, Citizenship and Living Arrangement. (US states, District of Columbia and Northern Mariana Islands)
 INDIVIDUAL STATES: (Microsoft Word Documents)
SSI: UNDER AGE 16
Number of children under age 16 receiving federally administered SSI
payments, by state, December 2007.
• SSI DATA - STATE BY STATE, December 2006
Table 7: Number and percentage distribution of children receiving federally administered SSI payments, by selected characteristics: Age, Citizenship and Living Arrangement. (US states, District of Columbia and Northern Mariana Islands)
INDIVIDUAL STATES: (Microsoft Word Documents)
SSI: UNDER AGE 16
Number of children under age 16 receiving federally administered SSI
payments, by state, December 2006.
• SSI DATA - STATE BY STATE, December 2005
Table 7: Number and percentage distribution of children receiving federally administered SSI payments, by selected characteristics: Age, Citizenship and Living Arrangement. (US states, District of Columbia and Northern Mariana Islands)
INDIVIDUAL STATES: (Microsoft Word Documents)
SSI: UNDER AGE 16
Number of children under age 16 receiving federally administered SSI
payments, by state, December 2005.
• SSI DATA - STATE BY STATE, December 2004
Table 7: Number and percentage distribution of children receiving federally administered SSI payments, by selected characteristics: Age, Citizenship and Living Arrangement. (US states, District of Columbia and Northern Mariana Islands)
INDIVIDUAL STATES: (Microsoft Word Documents)
SSI: UNDER AGE 16
Number of children under age 16 receiving federally administered SSI payments, by state, December 2004.
SSI: UNDER AGE 18, 18-64, Over 64, BY STATE
• SSI DATA - STATE BY STATE, December 2003
Table 7: Number and percentage distribution of children receiving federally administered SSI payments, by selected characteristics: Age, Citizenship and Living Arrangement. (US states, District of Columbia and Northern Mariana Islands)
 ALL STATES IN ONE DOCUMENT
SSI: UNDER AGE 18, BY STATE AND CATEGORIES
INDIVIDUAL STATES: (Microsoft Word Documents)
SSI: UNDER AGE 16
Number of children under age 16 receiving federally administered SSI payments, by state, December 2003
SSI: UNDER AGE 18, 18-64, Over 64, BY STATE
SSI Monthly Statistics
http://www.ssa.gov/policy/docs/statcomps/ssi_monthly/index.html
Various tables that provide national data only.
• Selected
SSI Data - 2002
Below are selected links from SSI Annual Statistical Reports in 2002 that may prove helpful if there is a need for comparing data from 2002-2003.
SSI Annual Statistical Report, 2002 (released August 2003)
www.ssa.gov/policy/docs/ sta tco mp s/ssi_asr/2002/exp_toc.html
This edition has been expanded to include several topics of interest to policymakers. A new section on the outcomes of applications follows applicant cohorts over time to see how many undergo a medical review and what percentage of them are ultimately awarded benefits. Finally, in response to numerous inquiries for data at the state level, SSA has provided state distributions for applications, awards, recipient rates, and receipt of Social Security and SSI on the basis of disability.
SSI Recipients: by state or other area, eligibility category, and age, Dec. 2002.
www.ssa.gov/policy/docs/statcomps/ssi_asr/2002/table09.html
SSI Recipients: by diagnostic group and age, Dec. 2002
www.ssa.gov/policy/docs/statcomps/ssi_asr/2002/table25.html
National Data. Age breakdowns: Under 5, 5-12, 13-17,18-21, 22-29 and higher
Note: First time that ages 18-21 and 22-29 are broken out
SSI Recipients: by diagnostic group, age, and sex, Dec. 2002
www.ssa.gov/policy/docs/statcomps/ssi_asr/2002/table26.html
National Data. Age breakdowns: Under 18 and 18-64
SSI Recipients: Working while on SSI, By state or other area, Dec. 2002
www.ssa.gov/policy/docs/statcomps/ssi_asr/2002/table32.html
Section 1619(a) participants allows working people with disabilities to keep SSI check and Medicaid when working and earning above the SGA but below the break-even point . Section 1619(b) participants allows working people with disabilities to keep Medicaid when earnings are above the break-even point . Other blind and disabled recipients who work. No age breakdown.
SSI Recipients: benefiting from specified work incentives, by state or other area
(Pass, IRWE, BWE), Dec. 2002
www.ssa.gov/policy/docs/statcomps/ssi_asr/2002/table33.html
• Selected SSI Data Under age 18, 1994-2002
SSI Recipients: Awards for children under age 18, by selected characteristics
1994-2002
http://www.ssa.gov/policy/docs/statcomps/ssi_asr/2002/table48.html
National Data. Categories: diagnostic group, age (Under 5, 5-12, 13-17), and sex.
Also data by SSA REGIONS (that do correspond with HRSA/MCHB Regions).
|
